I had a letter with a phone call appointment on but they never phoned me?

Hi Yvonne17 I have just answered your other post from a couple of days ago, before I saw this post. I am so sorry you have waited all day for this call that didn’t happen! There has obviously been some missed communication here. Give them a ring in the morning, there will be a reason why they didn’t call. X 

I’ve had a phone call this morning from the hospital saying they are not sure how long my side effects will last or if they will ease or get more? They said I’ll get word to have a CT Scan in 4 months time then I’ll get word back from them and my results I’m pleased I’ve had a phone call from the hospital but I feel disappointed that they couldn’t tell me if my radiotherapy has worked or not? I think I expected them saying to me that yes you’re radiotherapy has worked and you’re lung cancer has being cured I know I must be so stupid thinking that way it’s times like this that I wish I was a intelligent person because I’m not intelligent I’m a very poor reader and writer I’m so thick  I can’t fill forms in because I can’t spell my daughter Louise fills all our forms in and now I have to wait 4 months to see if my lung cancer has gone or is it still there or is it growing and spreading I’m trying so hard to be positive I’m just so fed up and to top it all it’s my poor son’s anniversary tomorrow it’s 8 years since our poor Arron passed away because of drugs and alcohol he was only 32 years old I tried so hard to help and cure Arron but I failed if I was intelligent I bet I could of saved him so now I don’t know if I still have lung cancer or not? Do I say I have lung cancer or do I say I had lung cancer but I haven’t got it now because I’ve had radiotherapy? I feel lost and alone what do I say to my husband and Louise my daughter and the rest of my family and friends? Love Yvonne 

Yvonne17 you have been through such an awful time. It is no wonder you are feeling low.  It is absolutely heart-breaking to lose a child, and I can tell by your post that you did everything to support him. I don't know why such bad things happen to such good people, but I can assure you there is nothing you could of done to have changed the outcome. He would of known how much you tried to help him, and he would know how much you loved him.

I am always asking my daughter to come and help me at home with anything technical, and it is the computer that is getting my spelling correct, not me! I know this is a very stressful time for you, especially with your sons anniversary. But you do seem to be beating yourself up, and you really shouldn't. Getting a cancer diagnoses is an ordeal, and is life changing! You have to think about what you have been through already, and you have done amazing Yvonne! Although the treatment has finished, radiotherapy continues to build up in your body for several weeks/months after the treatment has finished, so the side effects will get worse before they get better. Because the radiotherapy is still in your body working for the next few months, I think it is fair to say you are still undergoing treatment for lung cancer. This is why they do not scan you until a few months after the radiotherapy treatment, because for the next few months, it will still be working, shrinking your cancer. This is a good thing Yvonne, and I know it is hard waiting for the scan, but you wont get a true result if you have the CT too early.

Can I suggest you call the Macmillan support line as I feel that you may need some extra support at the moment. It is completely confidential and someone will be able to chat with you on 0808 808 00 00.  

Sending you a hug for tomorrow x 

Thank you so very much for your very kind and understanding reply you have made me feel so much at ease love Yvonne