Reaction to Chemo?

Hi I think I just answered you in the Roy Castle forum too .

I had a reaction to one of my chemo drugs on my second infusion , they tried slowing the feed down in the third but I still had a bad reaction , so for the final 3 I had just the carboplatin …. I was having radiotherapy at the same time which they said was the main thrust of my treatment though .Elly x

Thanks so much Elly, I've just replied in the Roy Castle forum  . Suzy xx

Hi subi.

I have stage 4 NSCLC if you click on my avatar you can read about my journey so far. After round 1 of my chemotherapy I developed sepsis my hole system went down and I was in hospital for a while. My medical team was brilliant and the got me through. It took a couple of months to get my system back on track and continue with my treatment plan. I completed the cycle's of chemotherapy and immunotherapy last April and I continued with my immunotherapy, the immunotherapy continues for 2 years. I tolerate the immunotherapy very well however I do suffer with fatigue, I just accepted I can't do things as fast as I could, but I can still do everything, so I'm ok with that.

I am happy to chat with you about the situation it seems we are travelling a similar route, just message me I've sent you a friend's request if you wish to accept. Have a good day.

Sending you a hugs 

Donna

Hi Donna,

I had bad fatigue on immunotherapy too. The recommended "exercise" solution came with the catch-22 of me feeling too tired to exercise. What got me out of that vicious circle was Creatine Monohydrate, which is a sports supplement.

It's something that the muscles make naturally when exercised. The brain uses it for energy too but the brain can't make it. Gotta exercise to help fuel the brain. No exercise? Then cheat and get that energy elsewhere. The Healthline website has a good write-up on it if you Google "healthline creatine". I use the minimum 3 gram dose just to tip me over the edge into being better able to do things - barely makes a dent in my blood tests but I feel the difference.

As supplements go Creatine is as safe as they get, but as ever if you plan on using something then you should run the idea past your doctor first.

kind regards,
Steve

That’s interesting , did your doctors agree to this then Steve ? I’m about to start immunotherapy and already suffering the fatigue from radiotherapy so might consider asking about this if I have further issues 

Hi Elly,

Yes, I told my consultant and got the thumbs-up.

I'm a big believer in full disclosure - if my doctors don't need to know then they are free to ignore, but if they do need to know then I've told them.

kind regards,
Steve

I’ll do some research thank you