Treatment description/ update

Thank you for sharing this Elly.  It is natural to be worried about the scan and results, and although that is on the horizon, I hope you have a lovely Christmas, you deserve the best after your treatment xx 

Thank you Chelle , you too love , thanks for the support this year you’ve given x

Hiya,

Hope you are doing well from your treatments. 

I have just been fast tracked for a PET scan after having a 2nd CT scan a few days ago and unfortunately I have a nodule of just over 5cm in my right lung lower lobe. It was 1st discovered after I had a CT scan on the 30th November 2022 and then discussed at the MDT for lung cancer who thought it was an infection and sent me to see the respiratory clinic and was put on antibiotics while I gave 3 sputum samples as they though it might be TB as I had a cough and shortness of breath(on and off for 2 months). It got worse while on the antibiotics as I started coughing up blood (started on Xmas day) and is still on going. The consultant rang me yesterday and seemed worried and lung cancer was spoken about a few times, aswell as him hoping it still could be TB or a serious infection. He said the PET scan will reveal much more and then it will be a biopsy. 

I always suspected lung cancer even though I am 43, asthma most of my life, never smoked, run, play football and go to the gym. But when I spoke to the lung cancer nurse who was in the MDT aswell as others, Roy Castle lung cancer nurse, Asthma nurse I was reassured the MDT don't make mistakes and if there was any suspicious feeling then I would be having a biopsy the next day and not be sent to the respiratory clinic. 

Unfortunately it seems like my worse fears are going to come true. 

How big was you le nodule in the lung? 

How are you now?

Thank you in advance from a very worried person. 

Hi there , I never asked about the size of my tumour to be honest ..  you can read my story by hitting on the avatar … it sounds like your MDT are just being thorough and a petscan and biopsy will confirm their initial findings .. it’s a worrying time going through these tests and feeling scared about the outcomes, I tried to just deal with one test at a time , one meeting at a time … keeps us posted … I had all those tests done as you’ll read in my story so if I can help at all just message …Elly x

Hi Elly

Tests and the waiting for the results I found the very worst  Like you say one day at a time  I tend to be very involved asking lots of questions then I get home and it take three or four days to process 

Thank you so much for putting this up. I’m not sure yet what treatment will be offered or if they’ll leave it as is. 
I had LAR with Ileostomy Aug 21 reversed Sep 22 blocked November then call back for lungs. Had appointment for Lung Function and consult. I’m now waiting for pre op for navigational bronchoscopy. I ve been told no operation as both lungs are involved so it’s so reassuring to read your story. 
It gives me hope that I can get through it. 
I’ve picked some short hair cuts. It’s too long at the moment anyway and I fancy a change 

Thanks again

Good luck my love , on a positive note , I didn’t lose my hair through my chemo  xx

Oh. Did it thin? 

A little , not noticeably x

Hi Immy

It's an awful shock to learn for the first time that you might have lung cancer. The team looking after you seem very thorough and quick off the mark. That is a huge plus. Personally I had 3 nodules each about 1 to 2 cm. I had the top right lobe containing 2 of the nodules removed and the third nodule removed from the middle lobe. I feel pretty good now and am just waiting for results of the tests done on the nearby lymph nodes (they took them out along with the cancer nodules)..

Sounds like you are in very good hands so rest assured about that whilst you wait. Waiting isn't easy. I try to blot it out by burying my head in the sand and keeping busy.

Very, very best wishes. Please keep us posted.

Paula xx

Hi Violet,

Thank you for reaching out to me and the advice you have given. I have already unfortunately diagnosed myself with lung cancer, after the lung cancer and MDT didnt think it was cancer on the 8th of December and sent me to the respiratory clinic. I was always worried especially because of my age and my fitness levels that I would be over looked.

I am now waiting for a phone call from the PET scan team so an appointment can be arranged and then it will be a biopsy. I have a young family and thats whats hurting me more than anything. 

What stage is yours? 

will you be needing any more treatment?

I have been told that there is so much choices of medication now for lung cancer compared to even 10 years ago.

Is this true?

Thank you once again.