ADENOCARCINOMA LUNG CANCER STAGE 4

Hi zippy

I was diagnosed with stage 4th cancer two years ago mine also spread to adrenal glands and lymph nodes i was put on the saron trial and just finished the two year treatment,  the good news is my cancer is gone from the adrenal glands and lymph node and only a very small trace left in my lung so treatment is worth it in my opinion.  I saled through the radiotherapy and the immunotherapy even went back to work full time last August and still going strong keep a postive mind this really helps, i wish you all the best i now have the prospect of a few more years of life and its worth every second.

Any questions get back to me

Good luck

Darren

Thank you so much for your reply I’m so glad you are back on your feet!! 

I forgot to say my Cancer is also in the Lymph Nodes of the middle of my chest.  My stomach has blown up too so I wouldn’t be surprised if my cancer has also spread again.

plus it’s Christmas and I have still not had an appointment to see the Chemo nurses to discuss treatment and feel they will leave me now til after Christmas.

Was you told your Cancer was terminal and did they say what percentages and chances you had with or without treatment.  Mine is less than a year if I don’t have treatment and 50/50 if I do.  I am 60 and may I ask how old you are please.

Thank you  

Zippy

Yes mine is terminal im 48 next week they should movr fast on treatment i was diagnosed in November 20 started my first treatment on 23 December 20 always ask about trials i was offerd ot as surgery wasnt an option for me .

I noticed you had immunotherapy and radiotherapy which I assume is better than Chemotherapy as far as feeling unwell!! Apart from fatigue!

I only have the choice of immunotherapy & Chemotherapy which has to go together and the Oncologist already said I may suffer more because of my fibromyalgia plus he said if it works I will constantly have ongoing treatment but I don’t relish the thought of forever being ill and to me that is no quality of life!! Plus I’ve already got an ongoing cough which I have had for nine months which is debilitating and absolutely fatigues me already.  As I said the Lung Specialist says my Cough is unrelated to my Lung Cancer (I disagree).

So you can imagine why I feel so unrealuctant to have treatment.

Zippy

Hi Zippy
I'm in a similar situation but no actual signs of lung cancer, but that is my primary and i have quite a few bone metastases. 
I've had 3 sessions of chemo and immunotherapy, and will have one more immunotherapy session and then have 3 weekly chemo session for another 31 cycles. I should know if mid-Jan after another scan, how things are going.
I am 68 and was in good shape before all this started 4 months ago. I have decided to continue with treatment as long as it's working and my quality of life is ok. If not, my husband and I are off to Switzerland.

Hi Fitzeagle Wow that’s a lot of cycles! So you said you feel ok?  Did you lose your hair?  So you had no bad Side effects after Chemo?

i naturally thought I would just be ill all the time plus I’ve Fibromyalgia and always feel fatigued most days!  Although I wonder whether it’s the Cancer now as I was only diagnosed Fibromyalgia 4 years ago.

But to be honest I’ve never ever felt good throughout my life.  Yet everyone like my friends look at me and say I look fit plus I’m a very young 60.

Please let me know how you get on and I wish you the best of luck  

Zippy

HI Zippy. my partner was diagnosed with Adenocarcinoma stage 4 lung cancer which as spread to the chest bone and pelvic and also there is cancer showing on bottom of his spine , he was only diagnosed in June 22 after going to the GP and was being told he had a trapped nerve. he has had 4 cycles of chemo and now he is on a maintenance course which can last for 2 years if my partner can tolerate it.so far he has had 2 cycles of the immunotherapy which each time makes him sick. the oncologist told me that with treatment a person could have 2 years and without treatment 11 months. x

Hi Zippy

I made a mistake - I'm having/have had 4 chemo and immunotherapy session and all the rest (31 cycles) will be immunotherapy - if I last that long!

My hair has thinned, but it's still respectable.

I think the week after treatment is the worst for me - nausea, change of taste, limited appetite, but then things start to improve. Fatigue is a constant, but I've had blood transfusions after the last 3 treatments due to anaemia. The anaemia makes me tired and a bit breathless.

But the 10 days before my last treatment I was feeling fabulous. I do have a 30 minute nap in the afternoon, and usually one after dinner. But that's ok, and if we have company, I'm usually good. I just often fall asleep in front of the TV at night, unless it's something super-gripping, or when doing crosswords.

Take care of yourself and good luck!

Hello Zippy

Sorry you find yourself here but you will find us a very friendly group very supportive of . I was diagnosed 1 year ago. If you tap my avatar you can read about my journey so far. I have stage 4 adenocarcinoma with bone mets. Everyone's is different when it comes to dealing with cancer. I take every opportunity I can to deal with my cancer and ensure I have a quality of like. I continue to do everything I did before I was diagnosed I'm just a little slower. I took time off work to do the chemotherapy and returned to work when I completed it. I continue to work full time and every 3 weeks I have immunotherapy. I am sure your consultant and the MDT will give you the best treatment available for you condition. Trust them but remember to ask questions and you can always ask questions on this forum. Ultimately every decision is yours to make.

I'm happy to talk any time just message, i sent a friendship request if you want to accept it.

In the meantime have a good day and don't Google anything it is the worst thing you can do as the information is very often out of date. 

Regards Donna

Hi Donna

It seems we are on similar paths. I've just completed my 4th combined chemo and immuno session. I have to say the week since my last treatment has been the worst. 

How are you finding the immuno? (I appear to be on a different cocktail). 

I'm having a PET scan this week, so should get some idea how the cancer is progressing.