Pulmonary Embolism symptoms I confused with Chemo side effects

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Just a quick post to flag up a mistake I made - in case others do the same.

I was on adjuvent chemo, cistaplin and vinorelbine, planned for 4 cycles, 21 days each.

For two or three weeks I had a tightness in the chest and was increasingly more out of puff. This I guess over cycles 2 and 3. But otherwise I was functioning normally, within the constraints of the usual minor chemo side effects!

I put this down to the chemo reducing my red blood cells in my lungs and so making it harder to breathe when i exerted myself. The worst effect was when I bent down to load/unload the washing machine. I would see stars and came close to feinting I guess, but a few deep breaths and I was OK. I wrongly thought this was the lack of platelets in the blood, a minor chemo effect.

I had a CT scan, with enhancement, as planned after the third cycle of chemo. This showed up a large blood clot on my lungs. A pulmonary embolism. PE, as they are called now. I was rushed from the Diagnostic Centre to the nearby hospital cancer centre that is treating me. 

So I was very lucky with the timing of the CT scan. I was immediately given blood thinners. I will stay on these for the foreseeable as i am due to go on Tagresso soon and apparently this has a similar increased risk of a PE to that of chemo. Cycle 4 of the chemo was cancelled. 

Hopefully, me not realising one of the signs of PE was just my mistake.

  • Hi chas i am coming to the end of two years treament not had chemo but i have had targeted high dose radiotherapy and immunotherapy and 10 weeks ago they found a pulmonary embolism in my lung so been on apaxiban, they did a second scan a few weeks ago the clot is still the same but hopefully it will break up. I will be gutted to battle terminal cancer for two years to be in a place where most of my cancer is gone bar a small bit inmy lung to be taken out by a bloody blood clot.

    All the best

    Darren

  • Morning Darren,

    Sounds like we were both "lucky". Irony aside, I think we were. 

    What annoyed me was that I failed to spot the signs and flag these up. 

    Yes, a bit of a body blow to have this to factor in to my aim of getting well to stay well.

    But we know this wouldn't be easy when we started this journey I guess Slight smile

    Best wishes,

    Chas 

  • I’m so glad you’re ok and caught it in time Chas ! My nurse told me the other day ,  don’t be stoic or assume anything , anything at all ring and check and I guess it was this sort of event she was referring to …..best wishes Elly x