Hi everyone
mum driving myself bonkers searching the Internet to try to understand what on earth is going on.
we have been told my husband has stage 4 lung cancer.
on CT scans there is a mass measuring 25mm and another mass in the left hilar region.
he has necrotic lymph nodes
he has had three pleural effusions.
he has never had a biopsy of any kind and has never seen an oncologist.
he was sent home and told to enjoy his remaining months of life.
he’s currently doing really well
his sats are mid nineties and his attitude is quite good.
meanwhile I’m convincing myself they’ve Mia diagnosed him and he has an abscess or he has sarcoidosis ( similar symptoms) I’m convincing myself they’ve made a mistake. But I also want to know, exactly what he has. His letters just say mass and necrotic lymph nodes and I find articles about misdiagnosis and then I convince myself they’re wrong. Do they really know ? Just from ct scans ? I don’t know if it’s SC or NSC nothing
I feel abandoned and ignored.
he has a catheter now and I can’t get a district nurse to help me.
many thoughts much appreciated ?
he has no pain whatsoever
rhanks M
