Hi Everyone,
My mum has recently had a PET scan and CT guided biopsy for suspected lung cancer. The PET showed highly active cells but the biopsy was inconclusive - the mass is 'hiding' behind her heart and is difficult to get to. She has now been referred for a surgical biopsy and we met the surgeon yesterday who is lovely. She thinks she can remove the whole mass in one go.
The bit we are stuck on is this:
They will do some tests on what they remove whilst she is in theatre. They will be able to 100% confirm if it is or isn't cancer. However there is a possibility this is not lung cancer but a secondary breast cancer and they can't tell us that until 10 days or so later. We need to decide if they confirm whilst she is in theatre that it is definitely cancer do we allow them to go ahead and remove a third of her lung or do we tell them to close her up, await the more detailed path report and then decide what to do risking a potential second operation.
I know there are some types of lung cancer that might not require the partial removal of the lung so if we allow them to go ahead straight away she could have part of it removed for no reason but equally if it does turn out to require further surgery then she has to go through two operations very close together.
She is in general good health but is only 7 months post breast reconstruction after her last cancer and is also really struggling with side effects from Tamoxofen. The surgeon doesn't believe the lung mass is the actual cause of her breathlessness so there is a concern that this is actually being caused by the drug and if she then loses part of her lung on top her quality of life is going to be very difficult.
If it does turn out to be a secondary breast cancer (and isn't the root cause of her breathlessness) then my understanding is that the partial lung removal wouldn't be recommended/first course of action.
Has anyone been through anything similar? Or if not what would you choose? Can anyone share what life is like post having a third of your lung removed to give an honest view of teh impact?
Thanks so much in advance!
So sorry your mum is having to go through this. I had surgical biopsy done in Dec. Which confirmed cancer. I had already discussed & agreed with the surgeon to go ahead with removal of the lobe affected. They made sure I was pain free during my recovery & I was up walking around really well the morning after surgery, drs were really happy. They give you this little device to blow into (spirometer) & to take home with you. I can’t honestly say I noticed much of a difference in my breathing. The key is to try to keep moving but not overdoing it initially. I’m sorry I can’t give any advice from the breast perspective but hope this helps in some way. I did get tired but would just sit & rest when I needed to. Wishing your mum all the very best, let us know how she gets on x
Good morning lovely people.
2nd CT scan on 17 April this tear (R upper lobectomy Dec. 2022) recent scan has shown my middle lobe is compressed. Having bronchial lavage on the 23rd May. Letter to GP from consultant described it as possible middle lobe syndrome, GP unsure what this is. Regular chest infections but one in December this year & a few weeks ago really floored me. Throat is quite raw & my voice is quite hoarse. Anyone able to suggest any ideas on what's going on with me ?
Sorry I can't add much more than Indian. I had my lobectomy on 3frrd Feb and was discharged on 7th with my chest drain in situ.
I thankfully had the drain removed the following Monday 14th
I am back at my own flat now with one of my daughter's dogs to keep me company!
I'm managing fine and have been out walking twice a day with no breathing problems.
Have a bit of pain first thing in mornings but goes fairly quickly once I'm up and about.
Get my telephone consultation on 25th to find out if it's all gone, but really I am so thankful and feel fine.
I do hope your Mum finds the advice she needs, and wish you both the very best xx
Thank you so much and I wish you the best of luck with your consultation and recovery, will keep everything crossed for you. Glad you've got the dog for company, they bring so much light to the day don't they! xx
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