sotorasib

Hi haring1982 sorry you haven’t had a reply your post here. Have you spoken to your wife’s team about these side effects? You could also ask in the Ask a Nurse here in the community.

Great to hear that encouraging results from the PET scan. Hope she can manage the side effects a little better x 

thanks for your reply .Unfortunately they dont have anyone else on the drug so hoping someone on here could help

From what I can find out about sotorasib is it is a new drug, which was only launched by the NHS last September.  From the information that I have read about it, it sounds like a very promising new drug which is only being offered to 600 people initially.  Unfortunately it does not seem that anybody else on the forum is currently on this drug, so I am sorry you probably wont get the answer here, but this new drug is definitely very exciting.  The side effects mentioned in the information I have read, does seem to mirror your wife's symptoms, but I cannot find any information regarding how long these last.

If you don't mind I will be sharing some information that I have found on Sotorasib, as I think the group will be excited by this new drug. 

great. Thanks anyway

Hi ,hope you are well ?  my Dad is on Sotorasib has been on it about 6 weeks , awaiting ct results so not sure if its helping . First few weeks he was fine no side affects but now he is hardly eating , aches and pains , nausea and loose stools ! How is your wife getting on ? have her side affects continued ? I have read that you can reduce the dose if side affects are to much , but not sure how effective they will be reduced ! Would be interesting to see how your wife is getting on with the Sotorasib and the side affects . At the moment I feel its doing my Dad more harm than good ! 

xxxxxx

Sorry to say my wife pass d away June 4th 

xx