Dad. Sat 20th November the day it changed..

FormerMember
FormerMember
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Hi, i am new here. I got told the news on Sat 20th Nov by my dad that he has been diagnosed with Lung Cancer. since then it has been non stop seeing consultants ect. Dad started his first treatment two weeks ago he had Immunotherapy they are not able to operate on him due to where the cancer is in his lung he has told us. 

However we still don’t have all the information. Dad does not know what stage cancer he has got and would not like to know. I am respectful of this as this is his wishes. I am very close with my dad and struggling to digest the news as i am also 22 weeks pregnant. Is it possible to not yet know what stage the cancer is before starting treatment? He has got NSCLC 

  • Hi brunette96, welcome to the group, but sorry to hear about your dad. I can imagine how difficult this is for you, especially being pregnant. 

    It is great to hear that you Dad is having immunotherapy. There are people in the group, that have done very well on immunotherapy. I don't blame your Dad for not wanting to know the stage of his cancer. Sometimes this can have a more negative effect than actually knowing. His oncologist would know the stage, but like yourself, he would respect your Dads decision not to know. 

    It is very scary when a family member receives a cancer diagnoses, and the fear of what is ahead, but talking to others who are in a similar situation to yourself does help you through this difficult time. There are a few members here in the lung group who are supporting a parent with lung cancer, but you may also benefit from joining one of the other support groups. 

    Family and friends 

    Carers only

     

    You will find several people there who are going through a similar situation to yourself.  You can also call the Macmillan support helpline for support 7 days a week from 8am til 8pm on 0808 808 00 00 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Hello

    so sorry about your dad, but hopefully his drs have it under control.  I completely understand your fears, especially as you are expecting happiness ! (What the chinese call pregnancy !) I was diagnosed with adenocarcinoma & had a lobectomy of my upper R lung on 30th December . Surgeon fairly certain there is no lymph involvement but I may need a bit of chem/radiotherapy. I will find out on 7/2/22. Would it be possible for you to have an appt with his consultant ? Who may be able to give you more advice/information. May have to speak to next of kin ( your mum ?) wishing you & your family all the very best xxx

    Good morning lovely people. 

    2nd CT scan on 17 April this tear (R upper lobectomy Dec. 2022) recent scan has shown my middle lobe is compressed. Having bronchial lavage on the 23rd May. Letter to GP from consultant described it as possible middle lobe syndrome,  GP unsure what this is. Regular chest infections but one in December this year & a few weeks ago really floored me. Throat is quite raw & my voice is quite hoarse. Anyone able to suggest any ideas on what's going on with me ? 

  • Indian I love the Chinese way of describing pregnancy. And how very true! expecting happiness. brunette96, I think this baby will fill your lives with so much joy, and will give your Dad the boost he needs. x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Hi Brunette

    Sorry you have had to join this group, but you are very welcome.


    You will get a lot of support here, great bunch of people.

    Has your dad had a biopsy done, as that gives the stage.

    I have lung cancer NSCLC and i was stage four from the start also not able to operate as where it is.

    I had chemo, then immunotherapy which was for two years, as you say they give it now every six weeks, mine was every three, things change  all the time, with these treatments.

    I had good results from mine and i finished Christmas Eve 2018, but had radiotherapy last year as slight growth, its a roller coaster ride we are on.

    Please ask any questions you would like to have an answer for, i am sure some one can advise you as they may have a different experience 

    Take Care Ellie x

  • FormerMember
    FormerMember

    Hi Everyone, thankyou for the messages. Unfortunately dad sadly passed away today. He battled his cancer the best he could and he is now at rest. 

  • Brunette

    I am lost for words, so very quick. My heart goes out to you and your family.

    Your Dad is now at peace, and will always b watching over you,

    My thoughts are with you all.

    Ellie