Confused

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I received a appoint letter for 5 jan 2022 for the lung team, today I have received a appointment letter for 12 jan from palliative care team. I’ve had no discussion with any team at the present time regarding my diagnosis at this stage I don’t know anything about what stage my cancer is at or what treatments can be offered, I am very confused I don’t understand what is happening to me at all. Can anyone please advise me is it normal to be referred to palliative care before I have been told what stage my cancer is at. Please advise if anyone can I am so lost

  • Good evening everyone I hope you all had a good Friday 

  • I completed my first cycle of chemotherapy and immunotherapy to it was a vey long day at the hospital 9 hours, the staff were fabulous and made a difficult day easier to deal with, so it high praise from me. I also say a big thank you to all of you who have supported me this far. Have a good evening Donna 

  • Well done Donna I bet you're exhausted now!  Another box ticked and more time to start enjoying life again. x

  • Hi little-fi I was exhausted but still didn’t sleep very well last night. Still I don’t feel to bad this morning, how is your journey going? I don’t think I’ve asked you about yourself and I am interested in other people, I just think I got a little stressed and selfish after being diagnosed myself I for to ask the people like yourself who supported me. Have a great day to all of you who follow this thread hugs little-fi xxx

  • Hiya how you feeling today Hamhat. Glad you got your 1st day out of the way. 9hr long day bet u were exhausted. Keep thinking positive. I get my results on Wed from my latest scan. Take care Rob

  • Muffin break good to hear from you. Thank you for your support and advice it was a long day but I got through it now all I have to look forward to are any side affects some have said they can be very mild and easy to deal with others have said they experienced severe affects so as you say stay positive and hope they are mild. I wish you well on results day I hope they are good for you you will be in my thoughts. Have a good day and I hope you have something fun planned hugs Donna

  • Hamhat well done for getting through your first treatment day.  9 hours! My goodness that was a long day. But you have the first one done now, so at least you know what to expect next time.  I hope the side effects are not too bad for you.  Xx 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Omg I feel so ruff every bone in my body hurts a massive headache and a sore mouth, I think I have got every side effect possible from my treatment on Friday, I’ve been up all night and I don’t know what to do with myself. Sorry if I’m sounding sorry for myself people but I’m not sure I can go through this after every treatment, anyone have any advice please 

  • Hi Hamhat, sorry to hear your not feeling to good, but it will get better, your body will get used to side affects and hopefully adjust. Your not sounding sorry for yourself it's natural to feel the way you do, but keep strong. You can always phone your lung cancer nurse and talk to her. Stay strong Rob 

  • Thanks Rob it’s so reassuring to know your out there. As you have guided me well so far I will take your word for it when you say my body will adjust. I just feel like I’ve been kicked around like a football today. Take care stay well hugs xx Donna