Immunotherapy starts on Friday...any tips/advice

Former Member
Former Member
  • 78 replies
  • 90 subscribers
  • 15771 views

I'm having my first treatment of keytruda on Friday and just wondered if anyone else on here is also having it?

So glad to be starting treatment but extremely nervous and weepy about the whole situation.

  • Former Member
    Former Member

    Hows itgoing?

  • Former Member
    Former Member in reply to Former Member

    All's good thanks. Get my first scan results on Wednesday so getting anxious now...so far immunotherapy has been fine. I get it every 6 weeks and my third one is in Friday.

    Hope you're ok?

  • Former Member
    Former Member in reply to Former Member

    Hi there.... How are you...have you had the tube removed.? Wierdly my effusion seems to have dried up too...yay...! I drained on Friday for the first time in 5 days and I'd say there was about 2 Mls if that...it was a mere dribble..I know theyll want me to keep the tube in for a while.to ensure it doesn't fill up again, but I'm hoping this is all good news..

    Please let me know how you are?

    Xx

  • Former Member
    Former Member in reply to Former Member

    Hi Gill

    Great news that your fluid is subsiding. 

    Yes had tube removed on Thursday. It was a challenge as it had been put in very securely lol. I am now just left with a few bruises and one suture which dissolves in a week or so. As I said before, my pleural nurse said 2 weeks each of less than 50 mg should suggest it's time to be removed. They will do a quick ultra sound first then decide. Have you called them to discuss it? I kinda had a hotline direct to them. They also sent me for a routine xray after the removal procedure. 

    It is so much more comfortable now even with the bruising. My diaphragm on the left side was up near my shoulder blade when they scanned me.. that's the lung collapse so hardly surprising I get breathless I suppose. Not a lot of lung to inflate! 

    I do hope you get your drain out soon too, it is much more comfy and as long as the lung is draining itself better now, it is better out than in. Good luck. 

     Keep in touch.

    Sally x

  • Former Member
    Former Member in reply to Former Member

    Hi...great news about the drain being removed. I'm nervous about what will happen with mine as it's been in there 3 months and they did say they can be hard to remove after a while so it may just end up being left it and me stitched up! Get my scan results on Wednesday and third treatment on Friday so I'll give Bronchoscopy department a ring the following week to see what they say.

    Hope you're having a good weekend.

    Xxxx

  • Former Member
    Former Member in reply to Former Member

    Hi Gill

    Having a good weekend so far thanks. Moved mooring for  few days so we are nearer the marina which we going into on Thursday for the winter months. 

    Hope the scan results are good and your next infusion goes well too. 

    Regarding the drain removal, it may be a struggle but they give plenty of local anesthetic so it doesnt hurt. Just a weird feeling. I am sure you will be fine. Mine was in for 6 weeks.

    Good luck.

    Sally

  • Former Member
    Former Member in reply to Former Member

    Thanks Sally....I don't know what I'd have done without you and this forum...xxx

    • I have been going through imuntherpy for 7 months now. Tumors have reduced by 75%. It does work. Good luck. 
  • Former Member
    Former Member in reply to Jess22

    Wow that's fantastic. I know i shouldn't get my hopes up as I've only had 2 treatments but thank you for sharing your success, it gives us all hope xx

  • Former Member
    Former Member in reply to Former Member

    Hi Gill

    Did you get the results of your CT scan? Any luck getting the drain removed too? 

    I got my CT scan results today. Not brilliant news though. As you know i have my infusions every 3 weeks so its only been 9 weeks or so since i began immunotherapy. Oncologist says my original tumour has reduced a bit but that it was the radiotherapy that did that.. he hadn't told me that before! He has noticed 2 new lymph nodes in my tummy area are enlarged so wants to keep an eye on them. He explained that the cancerous cells coming from the pleural cavity could travel almost anywhere through the lymphatic system. I will have another CT scan in about 5 weeks (Christmas allowing) before he can make a more informed decision if the Keytruda is working or not. Hey ho, will have to wait and see. 

    Hoping you have better news. 

    Speak soon, Sally x