Terminal Small Cell Lung Cancer Diagnosis

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Hiya, my dad (68) has recently been diagnosed with Small Cell Lung Cancer, that has now spread to his liver,bones and adrenal glands. Unfortunately, due to how quickly and how far it has spread, it is now deemed terminal. With a prognosis of anywhere from a few weeks to few months, my dads health has rapidly deteriorated. Fortunately he is just about eligible for chemotherapy, but even with the best case scenario of this being effective, they have advised he will still be lucky to have another 12 months. He is due to start chemo this week, with a second round in another 3 weeks before more tests to see if it has made an impact. As I will be the main carer for him, I am just looking for any help and advice on how to deal with caring for someone who is going through chemo, from all of the leaflets and info the hospital have given, I’m aware it isn’t going to be the nicest experience for him but I just want to be able to provide the best possible care for him when he is at home.

Thankyou in advance for any help/tips offered 

  • Hi Soph, It really is awful and so unfair, that this is happening to our parents.  I hope you get all the help you need and all the strength in the world to help you through this.  Just shout if you need a rant, I will answer as soon as I see it xx

    My Mum is 77 and was still working up until last month when we got this news.  She is looking really well considering and is full of hope and that's what counts.  I have read everything there is to read on this - I needed to be prepared so I could help her.  She was totally shocked by this as she looks really well and healthy on the outside.  She had a stroke and this is what brought the Cancer to light.  She is starting to swell round the abdomen (liver has 3 tumours) and has back pain, it's in her spine.  The lung is the primary (2 tumours) and has spread to lymph at breast bone, liver, a lymph gland in her right shoulder and now her spine.  It has taken over her body so fast and she is so small.

    Like you we have just started all the paperwork but the MacMillan Welfare Specialist has been amazing at getting all the paperwork done for us.  I just had to deal with DWP for Pension credits.

    Now for us its fight the battle ahead and head on. She looks as though she has been ok with the Chemo, intravenous on Wednesday and Orally Thursday and Friday.

    I am coping well enough, some would say I act a bit un-emotional but inside I could scream.  She can't see this, she needs to know I am strong.  I do feel so helpless at not being able to do anything.  I did get her what we now call the Chemo Repair Kit - I put together things like a thermometer, Moisturiser for dry skin, Bonjela for sore lips, gums and tongue, soft PJ's, socks and a cuddle blanket, just so she feels cared for and loved. 

    My parents have has a rough ride these last few months. My Dad also got Terminal Lung Cancer, his is slow growing, we don't know what kind as they said he wouldn't cope with a biopsy as he only has 39% percent lung capacity.  My Mum then had her stroke and that was battle.  Due to the symptoms she was having ( low sodium) they checked her liver and that's when they noticed the cancer.  My Dad decided to have a Massive heart attack and got 3 stents in. 

    My moto for now is one day at a time, and spend as much time as I can with them both.  They are breaking my heart xxx

    Love to you and you Dad xx