So for 18 months I've had 12 chemos of Carboplatin and Etoposide with 5 Radiotherapys in between, today I saw Oncologist to be told cancer on lung mote or less stable , but liver lesions a bit worse, chemo no longer working, he suggested trying Topotecan in tablet form instead of intravenous, he said also he would discuss with colleague any trials available that may help, and further that the Royal Marsden in London may have an immunotherapy that I could try. So not good news but hopefully some options to try. My question is, has anyone on here with grade 4 small cell been in this position, and if so what did they do, and did it improve their situation? Thanks for reading and any replies.
Hi Shedman I am so sorry to hear your news. I am on a slightly different journey to you, but I didn't want your post going un noticed as the group is quite busy at the moment.
What I can tell you is that I have seen many people in this group have very good results with immunotherapy. Also my mum was treated at the Royal Marsden and I know what excellent care she received there.
It is always good to have options on the back burner. Hopefully someone else will be along soon to chat with you.
Hi Shedman, there is an Ask a Nurse page where you can ask this question. Hope this helps.
