Afew questions if anyone can answer them

FormerMember
FormerMember
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My poor mum has been diagnosed with lung cancer and I’m going out of my mind..
Ive read reread & read again her discharge summary 
I just can’t make heads or tails of it at all, I’ve googled and read what I’ve found but it just doesn’t make much sense 
It hasn’t been staged yet I don’t think 
This discharge states it isn’t “curative” but it’s “indicative of primary bronchogenic neoplasma” it also says on the cover letter of the summary “single liver metastasis” which I know means has traveled but then on the next page of findings it says “suspicion hypodense lesion of metastasis” on the liver 

She hasn’t had any tests yet she got admitted to hospital with SOB & chest pain but was referred at the beginning of may for a scan then had a chest X-ray last Friday and the comparisons have been made from the two.. she is due to have a pet scan next week and then in 2 weeks a biopsy 

I’m not sure if I’m being deluded to the truth and don’t want to believe this is happening or if that just doesn’t make sense, I’ve never been in this situation and I want to be that support unit for my mum but I honestly don’t know what to do or think, my head is going around and around, I’ve not long had a baby who’s not even 2months old yet so I’m trying my best to keep my head above water here.. I’m not even sure if I’m writing this in the right place so I’m sorry if I’m not.. I’m just desperate for some answers I guess :( thank you for taking the time to read this I know it’s quite a lengthy post and I wish you all well

  • FormerMember
    FormerMember in reply to Toppy

    She’s having good & bads days as usual, she’s eating a lot better but the pain from the bone mets is causing her a lot of grief.. she’s being assessed for a stair lift soon to make those easier for her to cope with. Radiotherapy comes to an end this week they had to leave doing her lung on Monday because the pain she was having was too intense that coupled with the side effects she couldn’t do it.. luckily she has an appointment today for bloods ect so they’ve said they will fit her in today after those for the treatment she missed which I’m glad about.. it’s starting to get me really anxious as I saw her before the appointment Monday and she looked/seemed miles better just makes me worried so much at the minute.

    How are you, your mum & dad doing?

    ..x

  • Aww Sweetheart, I feel for you both.  You are stronger than you think and you will do this for her and at least she's getting her treatment.  I pray this clears it and she can be pain and cancer free.  My love goes out to you both xx  Sending you a massive hug xx

    Dad is actually doing really well the stents seemed to have eased his breathing a little easier, so that is a godsend.

    Mum, we are still waiting on the MDT, to decide if there is a treatment plan for her and to see if/or it has spread any further.  It seemed to hit her on Tuesday and she was very upset.....completely understandable, I have been waiting on it coming but it wasn't for herself it was for us, in case she dies, how will we cope x. 

    Its the waiting,  seems endless and so draining, the unknown.  I am taking it one day at a time xx

    All my love to you and you Mum xx

  • FormerMember
    FormerMember in reply to Toppy

    The waiting is the hard part my mum saw the oncologist the week and the prognosis isn’t great not sure if you’ve seen my post on chats & updates.. without treatment we’re looking at 2/3 months with treatment 6/12.. it’s just blow after blow after blow ..x

  • I wish I could swear and say what I am really thinking - this is absolutely unfair, if you need to talk way from here, you can message me xxx  I have read every post you have, I think about you and you Mum everyday.

    My Mum just five mins ago got the call from the consultant - she's to see him tomorrow at 11.45, the waiting is over but I am petrified now, actually shaking and feel sick.

    She has indicated that if it is only going to prolong her life 6/12 months she not taking any treatment.

    xxx

  • FormerMember
    FormerMember in reply to Toppy

    It boggles my mind why this isn’t screened for it really does if it’s one of the most “common” cancers.. it isn’t fair..

    Hopefully you’ll get the answers tomorrow write down any questions you have, I’ve read some positive stories on here of people who have our lived their prognosis I can only hope & pray our parents are just as lucky as those 

    Sending lot of love to you.. x

  • It's not fair, Our Mamma's don't deserve this, no-one does.  I just said that to my Mum last night so many cancers screened but not this one.

    Thank you xxx

  • Hi, Not good news,  She has Stage 4 SCLC.  Its is in her right lung, large one in the bottom pocket and smaller one in the top pocket, it has spread to 2 Lymph nodes next to lung and up to one lymph node in right shoulder.  She has 3 tumours on her liver and it has spread to the spine, they have advised it is very aggressive, so time is of the essence.  Timescale given is 6 weeks without Chemo and 6 months with Chemo.  The Beatson will contact her today for plan and McMillan Nurse's have been advised.

    Not sure where my head is but!!!!