Grade 2 Oligodendroglioma

Hi Applehey 

I am Steve, one of the community chamions and my expereince of cancer is via my wife who has Leiomyosarcoma though more recently my son was discovered to have a benign brain tumour and had surgery and then proton beam therapy more recently. Things can get challenging when someone has a rare cancer especially in finding others with something similar.

I am sorry I have no direct experience to share, though I do have ankylosing spondylitis myself so I can understand how difficult spinal issues can be, I hope you manage to make some progress with that. 

<<hugs>>

Steve

Hello Applehey 

My name is Steph and I’m part of the team who look after the Online Community here at Macmillan. May I wish you another warm welcome to the site, I hope you will find it to be a safe place of comfort and support.

I was sorry to read about your Grade 2 Oligodendroglioma diagnosis and the additional challenges you’re facing. 

I wanted to offer you some additional support, as well as bumping your post so more members might see it and offer you some support. 

Thank you for getting involved in this conversation in the diagnosed at a young age forum. I have joined you to the forum so you can start your own posts. This might be a good place for you to connect with others, in addition to this forum. We'd encourage you to introduce yourself so members can offer you some support. Other members might find it helpful if you add some information about yourself in your profile. 

Please do let us know how you get on accessing some support for the way you have been feeling. This information from Macmillan about cancer and mental health offers a helpful guide.

As a young person, you might also want to access some support from the following organisations:

• Young Lives vs Cancer offer a young adult service for 16-24yr olds
• Teenage Cancer Trust also support young adults to 24yr old
• Shine Cancer Support is for people in their 20’s, 30’s and 40’s with cancer
• Mind Over Cancer supports the mental health of young people with cancer

We also have a Macmillan Support Line if you have questions or would like to talk things through with someone who is there to listen.  Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

Please do let us know if you have any questions or need further support with anything at all. I hope this helps to show you that there’s a lot of support available to you and you don’t have to go through this alone.