Mass in pineal gland

Hi all,

just joined the group as I’ve discovered I have a mass in the pineal gland in my brain. I was originally told a cyst in October but it’s actually been noticed on MRI scans since 2010 but has basically doubled in size since then. It’s being talked as either a cyst or low grade neoplasm. I’m massively freaking out, the hospital aren’t panicking about it and have just left me for now but I am really worried now. 

  • Hi

    I'm sorry to hear how worried you are about your recent diagnosis. Unfortunately, I don't have any experience with brain tumours to be able to share with you but I noticed that your post had gone unanswered. I've looked for previous posts mentioning low grade neoplasms in this group but have been unable to find any.

    Could I suggest that if you don't get any responses from anyone you post your question in ask a nurse and one of the specialist nurses will reply within 2 working days.

    When you feel up to it, it would be really useful if could pop something about your journey into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.


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  • Hi MSlady

    I have recently been diagnosed as having a possible low grade neoplasm in my right temporal lobe.  I'm waiting for a date for another MRI which will be three months since my first MRI.  Initially it was thought I had epilepsy but this showed up!

    I go from getting on with my day to days like today when I am weepy and thinking the worse. I'm on my second set of meds to control the seizures caused by the tumour.

    I would be interested to hear how you are getting on.

    Thinking of you.