Diagnosed with HCC Liver Cancer, having SABR Ablation - what to expect from treatment?

Good evening Oliver. I am sorry to hear about your diagnosis.

I have been diagnosed November 2022. I was treated with immunotherapy, then  2 weeks ago they stopped treating me and waiting for a new drug to start in a month 

I m sorry i never heard of SABR ! May I wish you the best. Just take it one step at the time my friend, find something to occupy you and friends and family .  Chedly ( 78 years old)

Hi Chedly 96  Thanks very much for your reply, I do appreciate it, but I was just trying to find someone who had undergone the same treatment, to give me some insight into what was to come, Sorry to hear of your results hopefully the next treatment will be more successful , keep strong and good luck

Oliver (72)

SABR is a kind of precise radio therapy pinpointed to the cancer. But I don’t know anyone who had it to give you an idea I’m afraid. 
in March 2023 I had a radio therapy called  SERT but did not work. 
I know it doesn’t help but take it a day at the time 

I do hope all will be well with you surrounded by family & friends Love & support.  Chedly 

Hi chelsey, Thought it was time to connect with you after a short break. How are you ? Have you started on your new treatment yet ? I'm still on the same treatment but am beginning to struggle with all manner of things. I'm starting to take things personally and am staying home a lot more than I did. I'm also starting to feel emotional towards things that I read. It's starting to affect my dreams which are sometimes     muddled and everybody and out of kilter and I'm waking up to try and stop them. Pretty crappy so I'm going to have to do something, trouble is I'm not too sure what. I'd love to know what your new treatment is and how it's going if you have started and if not how are you doing without treatment.  Wishing you all of the very best   Jackie

Oops finger trouble didn't mean to change your name or gender. Blame predictive text !

Hi Jackie,

I am sorry for this very long delay. How are you? And how are you doing?

I hope this finds you & your family well.

 I have had chemotherapy for 6 months, but after a CT, I was told it did not work as hoped. On July 28th, I was told to stop the tablets, and my cancer is terminal; there's not much else they can do.

I'm now on palliative care to keep me as comfortable as possible. 

I have come to terms with it and accepted it, but I'm not sure if my family has.

I listen to my music most of the time and walk when I can

Keep hope alive, and I wish you the best

Chedly

Hi Oliver,

It has been 8 months since my last message to you. I am very sorry about that. In March, I was prescribed chemotherapy in the form of tablets, one in the morning and one in the afternoon. On the 28th of July, after a CT, the head of the team called me and told me to stop the treatment; unfortunately, it did not stop the cancer, and a new lesion appeared. They appointed a palliative care team to address any pain or discomfort; otherwise, there's nothing they can do.

A month ago, I was watching breakfast TV, and a professor from Leeds University was on talking about SABR and the research they are doing.

I researched it and found all the information on McMillan's website 

Did you have the procedure? If so, can you please tell me about it? I want to ask my team at Churchill Hospital if I can volunteer for this procedure. 

Kind Regards,

Chedly

Hi Chedly,

1st of all please may I say how saddened I was to hear your news. It must be very tough on your family. Coming to terms with terminal illness must be very scary for them. I'm like you and have come to terms with the fact that I'll see my life out earlier than hoped and probably in pain. It's been a tough few months and we have, in that time, lost 4 friends mainly to cancer. Some have been very quick but others have really suffered which is dreadful for them and their loved ones. Me, well I just seem to keep going. Have my bloods done every 3 weeks and it's always fine for me to go ahead and have treatment. To date I'm on my 38th tomorrow. The longer I go on I'm hearing some terrible stories of how people suffer for the craziest of reasons and we are having this with a friend of John's at the moment, Mick doesn't want us to travel to see him right now as the pain has just taken over, but hopefully we can go after I have had my treatment.

Please don't feel as though you ought to contact me. You have so much to deal with now but I would like to say it has been an honour to get to to know just a little about you and I really do hope that things don't become too bad for you. Take care my friend and please don't forget I am only on the end of an e-mail should you feel so inclined

Sending strength to you and your family

Jackie