Hi

Hi Tia xx

Hi Tia, 

I'm sorry to hear that you are feeling unwell and that your liver may be the cause. As you ask, I can only speak on behalf of my Mother who has liver Cancer. So we have recently been dealing with Consultants and Doctors.

Hi Tia,

I hope you are feeling a bit better.

Please call me as the threads on the App seem to jump around. 

Warm wishes,

Myles. 

07829931801

Hi Chedly, How long have you been on Immunotherapy please ? I've just had my 20th cycle and so far it's going well - no real adverse reactions to treatment  just problems with getting the cannula in as my veins are not needle friendly. It's a real bonus for me hearing that you are doing so well on your treatment, keep well

Jackie

Hi Jackie,

I have been on immunotherapy since March 2023. I was diagnosed with liver cancer on the 2nd of November 2022, a nice autumn day like any other day, It was 9cm! I was shocked. His words were " I will keep you alive as long as possible and as comfortable as possible", which is fair enough, I am happy with that, can't ask for more really.

In February 2023 I had radiotherapy, and in March I was told it did not work so l was put on immunotherapy since then.

In two weeks, on Wednesday the 13th of November, it will be my last cycle and it's going well. I have some abdomen pain and tiredness, but nothing to worry about, however, depression got hold of me again, not because of the cancer but because of personal matters.

The Churchill Hospital made an appointment for me on the 11th of November to have an endoscopy, (a camera down my through to see the stomach), it's not pleasant ! I had it before last year.

Another appointment was made for me with the Professor and his team on the 25th of November to decide the way forward: either to continue with the same treatment or "something else" ? The team at the Churchill keep telling me "We have many tools in the Box" Don't worry, easier said than done of course.

I hope all goes well for you, keep in touch, I will tell you what is happening with me after the 25th of November. 

Regarding the cannula, I have seen the nurses putting the hand of the patient in a bucket with hot water for a while and it works. 

My best Wishes

Chedly

Hi Chedly, Hope you are feeling on the good side of OK. Recently had both my CT & MRI scans and next appt. with she who must be obeyed is 12th November. I will let you know how I get on. Our Oncology Unit is nearing the end of it's refurb ( only 1 year overdue ) so moving back into what will be a 5* facility. We are currently using a space in the Ark Centre which is very crowded and my heart goes out to the nurses who just run around all day. I shall enjoy doing their Xmas box this year as they deserve something extra special. We have some amazing staff and sometimes it's like a comedy show ! Went into town and it's suddenly hit me that Christmas is coming up and I really don't know how I feel about it. My 2 brothers live a long way off from Berkshire. Mark is in Lancashire & Tony lives in The Netherlands so I know I won't be seeing them. It's probably for the best as they have been the ones that have had to tell my nieces, nephews, and their children so the youngsters will probably be frightened of me. Very best of luck with your next scan and lets see those tools come out of the box. Please let me know how you get on. 

Very best of wishes for you

Jackie

Chedly, Hi and how are you ? I've been trying to find you so that we could have a catch up. Myself I am just about the same, nothing new has shown up so that has to be a good thing but I am just so weary not just physically but mentally as well. Normally I love all the hustle and bustle of Christmas but this year I just can't be bothered and that in itself bothers me !!!. Back to you, how are things with you ?

How are you coping ? still listening to music ? I tried but it just made me cry. I do read a lot and I'm big on crosswords so my day isn't just a waste. Are you out and about ? I'd love to keep up to date with you. I do know Oxford and the area. I lived on the outskirts when I was a young free and single lady and had some amazing fun whilst there and we do visit from time to time. I'll wait to here back from you.

Very best wishes

Jackie

hi Jackie,

Thank you for getting in touch asking how I am and letting me know how you are.

I am very sorry but I find this App very difficult to navigate, so I did not see your message until last night by accident. I am feeling good as far as my cancer, I had my scan and my oncologist (a really lovely person very understanding) took off one of the drugs I took up to now. My immunotherapy consists of 2 drugs I take simultaneously by drip in the vein every 3 weeks, from January it will be only one; I will be monitored every 3 months she said and see if my liver will still functions normally and the cancer stable.

I am sorry music did not work for you, I have to say Music is my world. I do not read but love to listen to stories like short stories on Radio 4 or RTE Lyric FM from Dublin as well as the French station. Yes I am still going out and about as I always did, a bit of gardening although I have "No green fingers". I also go to the gym cycling once or twice a week but I really struggle with motivation! so have not been last week or this week. I take my granddaughter to school (She is 8 yrs) and that is very nice, she talks a lot but like it. 

Yes would like to keep in touch and hear your news, I will try to find you on this easily I hope. Which hospital you go to by the way?

Keep well, try to remember the good memories. Many hugs and wish you strength and good. there is a site called "Every mind matters" try it. Best wishes

Chedly

Hi Chedly, just got home from treatment and looked at my messages so was able too find you to reply. Your Granddaughter must be a real tonic for you. I love the way they chatter on about anything & everything. In answer to your question I am being treated at Basingstoke Hospital Rainbow Unit - it's a great place to go and is always full of laughter. Christmas Decs were being finalised today so there was lots of off key singing. Oh re the drugs I am on they are  Atezolizumab & Bevacizumab. I tolerate them both so well that I have one for  45mins & wash for 10 mins and the 2nd one only takes 1/2 hour. There are changes to the ward coming up with a couple of staff moving to different departments but Oncology linked and 1 of the new nurses is a bit of a madam but as Clare - the big wig says. "We'll get rid of any airs and graces"! I'm now free until 22nd Dec and I need the time. We have classic cars and annual dinners are on the cards for both clubs that we belong to. We also have a get together with other Rally Marshalls - we are both Marshalls with lots of experience. Also ex work colleagues, skittles group, etc. So lots of parties for me. now I'm back to decorating 2 collection buckets for raffle tickets and then an evening wrapping gifts. If we are not in touch before Christmas may I wish you a Happy Christmas and a good & healthy 2025.  Jackie x