Primary Liver Cancer

Uppercourtone

Hi Rachael and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I have a different type of cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted.

While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Thank you so much for your post and helpful comments. I have updated my profile now and look forward to hearing from others with their experiences. 

My husband jas been  battling Hcc for 7 years. Today is actually his First Liver Anniversary . Succesful liver yransplant 1 yr ago and then recurrent  hcc to 1 lymph node under  the brand nre Liver thats working Perfectly only 6 months after  transplant he was actuslly Low Risk for  Recurrence going into transplant So now fighting for life again. He jad the whole gadtro hepatic ligament removed and only 1 node was positive  but just had 1 enlarged lymph node so 2 biopsies layer just found out yesterday . No Malignancy just Reactive to the above Surgery . But his Dr is acticting to us like nothing else can be done other than Levantinib for Systemic  therapy . Whst cure is your Dr offering you . We know Surgery is always best then add radiatikn and chemo to attack it from all ways . Our Dr is the Head of the Liver Tumor Board so we know other hospitals Dts offer Aggressive Treatment Right Now while its Still able to be cured .Jes supposed ti be a Top Dr . My husbands Performance Status is Excellent as he was offeted surgery only 6 months after transplant How can his Dt not Offer any Local Regonal Treatment?? He was thought that that 1.5cm enlarged lymph node turned out to Not be Even Cancer So if this comes back we Now know he THINKS HE CANT HAVE T TREATMENT this was only 1  small tumor and Hes the Top Dr???? We cant move and this is a top hospital?  What treatment or drug eere u offered? Thank you

I'm  new on here so thanks for the Info. I have liver cancer but don't know which type.

My husband 6 weeks ago was diagnosed with primary liver cancer, you could of knocked us down with a feather. He has had scans after scans, blood tests, etc. He was told that cannot operate as the tumour mass is 16 cm and now has jaundice, there was talk of treatment SIRT but that has now been ruled out as the liver is too damaged. Now we have been told its drugs and palliative 

Hi Rachael,

I was diagnosed two months ago with hcc and it was a complete shock. I am currently receiving immunotherapy and about to have my third cycle. Hope you get treatment that works.

Hi there - thank you for your good wishes and I wish you too well with immunotherapy too. My chemo continues and I’m having some radiotherapy tomorrow to blast the tumours in my liver and then hoping chemo can help further. It’s a journey for us all. One thing I can’t recommend enough is counselling to help cope. I have sessions through the Marsden - there was a waiting list but it was well worth it. I recommend counselling and if you can’t access - places like Maggie’s drop in centres are so helpful and have trained staff to talk to as well.  

Thinking of everyone either going through their journey  or relatives and friends supporting. 

I had a 4 cm hepatocellular carcinoma. I'm now cancer free and still live ten years later. There's a lot more that can be done now than in the old days.

Bless

my dad at 83 has it’s been diagnosed his tumour is 15 cm had MRI scan so we r awaiting pathway he’s finding it very difficult to eat feels sick constantly has taken anti sick tablets but these have ven him an upset tum

Hi Rachael  Iam glad you joined this group . They will provide you with support comfort and answers . Iam from the US but I love this informative group . Their are FB groups in US if you are interested . They are Living with Liver Cancer . Liver Cancer Support Friends . My husband has had Hcc since 2018. Liver Transplant last year and Recurrent hcc 6 months after transplant . There is so many treatments for Hcc and the new systemic drugs are working Wonderfully . They feel that one of the combination Clinical Trial drugs they are working on right now may be a game changer soon . The FDA in US is pushing thru many drugs sooner to help people . The A And B   combination is helping many people for years . There long names like atezibevalub  . Thats not really the correct name but you can look it up . My husband hcc came back right under his Brand New Transplanted liver in a lymph node too. They will probably put him on Lenvima a systemic drug . That ones spelled right . Ask any questions everyone was just like you  overwhelmed.  We are here for you!!