Hi, just joined here. I've been diagnosed with cancer in my liver since March 19th 2021 , I had pain in my liver over a year ago and eventually got a phone appointment with my consultant in October. He told me I was 63 and should expect that, nothing to worry about. I was diagnosed with haemochromotsis in 2007 and 3 years later caught HepC. This was treated and after 2 tough years it was gone. The reading I have done since diagnosis indicates I was\am a very strong candidate for liver cancer and I wonder why I wasn't monitored and scanned regularly to check. My diagnosis was confusing, I've had countless scans MRI, CAT, PET, and have only recently had it confirmed to be hepatoma. I've been told tumours are involved with arteries and so am refused a transplant. Which I felt was my only real chance of surviving more than a year or two. I'm told I will have microwave ablation and chemo delivered in "pellets" to my liver via my goin. The liver needle biopsy I had was the single most painful experience of my whole life, and I'm usually able to take a fair amount of pain and discomfort , so I'm quite scared of the ablation procedure as I imagine it to be extremely painful.
Anyone out there have any experience to share? I've not had a single face to face meeting since diagnosis, occasional rather hurried phone calls which don't tell me much at all. I feel like I'm really not very important in these people's opinions, and I'm just left in the dark with a death sentence.
Hi . I’d like to offer you a warm welcome to the Macmillan Online Community. I’m sorry to read about your diagnosis but you’ve come to the right place to talk to other people who are in the same situation and help you get through this. The Covid pandemic has hugely affected how we are given these life changing diagnoses. I was told by a nurse on a phone call I had cancer, not seeing a Consultant and hearing it from him with my husband by my side, nor a nurse in the room.
My cancer is different, but a cancer diagnosis of any kind makes us ask lots of questions, causes confusion, stress and probably emotions we’ve never experienced before. I see you’ve joined our Liver cancer group, this will be a good place to connect with others making the same type of cancer journey.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time - I'd copy and paste this, your first post as it's informative.
To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section.
The Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.
Sending you welcoming hugs B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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