Confusion about liver transplant treatment after bile duct biopsy

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Hi,

We've just received my partners scan results. It's a bit confusing. He's been told that he has a small lump in his liver (near the top of the liver at the back near 3 Major blood vessels) and it can't be cut out because of the location, so he needs a liver transplant. But the consultant said this is unlikely as people with cancer generally aren't offered transplants. The lump hasn't grown at all and it hasn't spread, so it is likely stage 1. The location of the lump also means trying to get tissue from a biopsy is apparently very risky, so they can't confirm it is cancer. The consultant said if we can't get a transplant, my partner would need to have chemotherapy, but because my partners biopsy (taken originally from the bile duct) came back as pre-cancerous, oncology at the hospital won't do it.

Has anyone received a liver transplant or know anything about it? The consultant seemed less than confident that my partner would receive a transplant even though he fits the criteria for one so he is referring my partner anyway. Does anyone know of any surgeons who would potentially be prepared to remove a lump such as this? 

My partner is only 38 and has already been through so much already, I can't lose him yet. He is convinced that because it isn't curable, he is going to die within a couple of years. I've told him just because it's not curable, doesn't mean not treatable. Is there anything else I can do to help him? 

  • Hi Hopefulnetty

    I am sorry to hear of your partner's diagnosis and the confusion around the scan results. I can understand that this is a really worrying time for you both. 

    We are not medically trained on here and can only talk from our own experiences. I wonder if it is worth you posting your medical questions directly to the nurses. They would normally respond within 3 working days. 

    (+) Ask a Nurse | Get answers about cancer | Macmillan Online Community

    A quicker way of getting answers would be to give the Support Line a call and talking it through with one of the nurses. The support line is there from 8am-8pm daily. It can also help just to talk things through with someone. 

    I hope this helps a bit and you soon get some clarification from his doctors as to what potential treatments may be available. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm