Recurrent Liver cancer with decompensated Liver means no anticancer treatment options possible

  • 0 replies
  • 14 subscribers
  • 37 views

My Dad was diagnosed with liver cancer over 12 months ago. He also has cirrhosis. He had a liver resection which we were told had been successful and he recovered well. My Dad then started losing his appetite and having a horrible taste in mouth, has anyone else experienced this around the taste and how to manage it? Despite this he was given the all clear after his first scan in December but then his health steadily declined, he stopped eating properly and became very poorly. Kept being told his symptoms were unrelated.  He ended up in hospital with acute kidney injury stage 3 and a stomach infection caused by a clot in the portal vein post surgery and early stage recurrent liver cancer. Due to his liver being decompensated and not coping properly they have indicated that no treatment is likely to be possible and we waiting for the dreaded news to be communicated to us next weds. This outcome has also been presumed by doctors caring for him. We are all devastated and no idea around prognosis yet but it isn't looking good. We were due to go on a cruise together with his young grandkids in 4 weeks, can this still be possible? Has anyone got advice around insurers to use? How can they fluid in his stomach be managed more effectively? 

I she also researched immunotherapy (using cells from umbilical cord), after having a first chat with them they have said that this could help improve his symptoms making him more comfortable and may extend his life. This is likely to be costly upto 20k. Has anyone got experience of using this, has it helped? Does it help even with a decompensated liver? I am desperate to help my Dad, I am completely devastated and heartbroken, I love him so much. Please can someone help with my questions