How do people cope with the roller coaster of cancer ? The giving of hope & positivity only to be knocked back again within a couple of weeks. My husband was diagnosed with primary liver cancer in March (found incidentally) & since then our lives have been devastated. Initially, we were told surgery & follow up treatment, then, after further tests told not suitable cancer was incurable,Next we were Told he should be suitable for TACE, after 2 weeks we were told not suitable, then, we were told he was suitable for combined chemo /immunotherapy in 3 weely cycles& if he tolerated well they foresaw he could live well for another 3/4 years, maybe longer. 5 weeks ago he had 1st treatment, all went well & we were begining to be encouraged. Next blood tests for chemo showed raised LFTs & chemo wasn't done. Last week results down a bit but still not able to have chemo. We don't have a nurse specialist or Macmillan nurse (apparently there isnt one) & nobody to turn to for advice or support other than consultant oncologist, we were promisedall sorts at chemo pre assessmentbut when weve asked - nothing available. Apparently we won't see the liver specialist anymore now either. We've had to ring around to get any info & can only leave messages to which nobody replies, however, phonecall from oncologist last week said my husband might now not be suitable for this treatment either ! He's had another scan on Monday & bloods including AFP & w go this afternoon for results; I'm dreading more bad news !! We have our list of questions ready, but past experience doesn't give any positivity. Where is all this support that's meant to be there ? My youngest son also has cancer & we've had similar experience. After 12 months of a consultant messing around my son is now extremely ill & has been passed to another Dr who has discovered a 2nd large tumour & were taking my son (2 hours before my hubby's appt this afternoon) for a pre op assessment ready for urgent surgery on Monday. I'm afraid there's no positivity here, we've run out. How do people cope, & is there anyone who has had chemo stopped after the 1st cycle but then had another form of treatment with good results. Thanks for reading such a long posting.
