Liver Lesions

Hi, you have just described me, I have been in pain now for around two years and been dismissed by GPS, I have recently seen a new GP who sent me for a CT scan of my pancreas , this has now shown I have 7 lesions on my liver, I am now waiting on a MRI appointment to come, the pain is unreal if I sit for too long it hurts I can’t lye down or stand for long, I live on pain killers, I got to the point where I was thinking I was going mad that the pain was all in my head, it’s strange that everywhere I have read it says pain on right ! Mine is on left under my ribs front and back and rite in the centre directly under my ribs, I’m sorry I can’t give you any answers but I can give you all the sympathy in the world as I know how you feel, I am 53 so a lot older than you, I still go to work even tho my GP has offered a sick note, I think I would go round the bend sitting at home thinking too much ,, please take care an let us know how you get on x

Hi 

newbie here and in all honesty don’t know what to do/think. 

I went to the GP January time as I was struggling with what I presumed were menopausal symptoms. Felt really listened to and HRT was discussed but firstly a full blood screen needed to be done to rule everything out. All ok apart from my vitamin d level so prescribed a crash course of meds for this. Seen end of March to discuss. I felt 100% better but told at this apt my thyroid function was raised so was my liver function test (35 should be under 34). Told it was nothing to worry about but to have repeat bloods done in May as my GP thought I may need thyroid treatment. Fast forward to 2nd May bloods done ️to be rung and told everything looked ok but my liver function is now 38 so I was being referred for an ultrasound. Again don’t worry probably just a fatty liver. I should say at this point I have NO symptoms! Anyway ultrasound done this Wednesday, GP rang me yesterday to tell me there are 2 masses on my liver 1 x 6cm and 1 x 8mm so I need to go for an urgent MRI and for consultation with an upper GI consultant. I’m trying to stay positive but those pesky positive pants keep slipping. 

I don’t really know why I’ve just written this but want to talk to people who understand the anxiety. 

I hope you have heard something following your MRI. 

Hi Newbie

First of all it's no surprise that you are worried, you wouldn't be human if you weren't.  It's also very sudden and this in turn gives us a bit of a shock even if it turns out to be something and nothing so the anxiety is perfectly natural too! My diagnosis is very different to yours but the positivity slipping is all to familiar, the way we deal with things now is by refusing to worry about things we don't know the outcome of yet, if I've got a scan coming up I refuse to let it fill my time up until I know the result and the possibilities the result might throw up.

I know its easier said than done and I wish I could be more help to you in the right now but honestly, worrying or getting anxious is although perfectly normal, just a waste of your precious and healthy time. 

Eat and drink healthily, take some exercise everyday (several short walks works for me) and be kind to yourself. This could all just be an easy fix.

Fingers crossed for you  

Hi KittyCakes,

Just wondering how you got on with your lesions? Hope you are well.

Kind regards 

Hi, thank you for your reply and I’m sorry I have only just seen it.

i got the all clear after my first MRI and spoke with a consultant who wrote off my liver pain as fibromyalgia (it definitely, definitely isn’t ) they diagnosed it as focal nodular hyperplasia which doesn’t have the potential to turn cancerous and usually doesn’t need management 

he sent me for a follow up MRI 2 weeks ago as a precaution before discharging me. The results went back to him within 3 days and he has spoken with a nurse specialist who has referred my case to the MDT at Aintree hospital who specialise in liver health. No one is telling me anything and I am beside myself with worry. The GP has asked them to advise whether my scan results can be shared with me incase there’s something in there that will affect my mental health. 

I’ve no idea what to think and feel very let down after being told it was nothing to worry about. 

Hello,

Just messaging to ask how you are getting on? I have a similar story with liver cysts

Take care

SoCoTo

Hello,

Sorry to hear you have waiting for answers- I know the feeling well.

I got told the 'all clear' but I wasn't! I am back getting chemo-

Keep at the docs/your oncology team to find out more info.

Take care ️ 

Thank you. I actually had my consultant appointment today. Two of the lesions have stayed the same, they think they are pretty sure they’re focal nodular hyperplasia. The third has changed and they aren’t happy with how it looks. They actually used the ‘big C’ and said they need to rule it out, so that’s pretty terrifying. It’s been referred to Aintree MDT in Liverpool who specialise in liver problems, so he said they should get back to him in the next week or two with a plan. Depending what they think it will be MRI every 3-6 months or a biopsy. 

I’m feeling a lot of feels today and it’ll be an anxious couple of weeks to come x

Hi I have just completed a SABR SESSION OF 5 RADIOTHERAPY treatments over 12 days. (This is a relatively new and up to date method). Prior to commencing, I had an MRI and PET SCANS. THERE IS no discomfort with treatment. Side effects are a bit tired, a little weak and perhaps some nausea (you get pills to counteract this). It takes about 4 weeks after treatment to get back to feeling normal. However it takes another 2/3 months before results in order for inflammation to clear. You have no symptoms of this. 
hope this helps, you are young which is a massive benefit. I am 84