Sorry to rant. After a year of tests, at my last consultation, it was agreed that another mri was needed and if the tumour stayed the same size of had grown we would decide between ablation and tace. Just had a call from Ninewells to say mri showed no change, tumour is still 2cm, which is great news but under review and another mri in 4 months. Do I have to accept this decision??
I am in a lot of pain and getting no answers. Not sure what to do now. Any advice appreciated
Hi Angie1382. I am so sorry to hear you are in pain. Have you spoken to your oncology team or GP about this? I don't know if you are already on pain relief.
It is great news that the tumour has not changed, but as you were expecting a different outcome to watch and wait, I can see this will be very frustrating. You can ask for a 2nd opinion, and I do know many people who have done this during their own treatment. You can speak to your Oncologist about this, or if you feel uncomfortable doing this your GP can arrange this for you.
If you need to speak to someone about this then please do call the support line on 0808 808 00 00. It is a free call number and they are available 7 days a week from 8am til 8pm.
Wishing you all the very best.
