I. Am a new group member and have had AML for 8 months. Anyone in similar situation?
Hi All, I’m new on here although joined this forum some time ago but haven’t gotten round to posting anything yet. I was diagnosed with CML in May 2020 (7 wks in to lockdown) completely unexpected. Started on Imatinib and all things considered I’ve...
Hi I was diagnosed with cml in December 2020, I have been on imatinib since Jan 2021. I am happy to say it is working well. However I am have problem with my weight which is getting out of control and I'm getting more and more depressed about it. Has...
Hi everyone, I hope it is ok for me to be part of this group. My husband was diagnosed with CML in Oct 2020, he has been on Imatinib & then Dasatanib but unfortunately his bloods haven't had the response his consultant was hoping for so they are applying...
Good evening all, My Dad has MDS and other things possible unsure of what a lot of the jargon means to be honest., Unfortunately he is not able to have a bone marrow transplant due to his heart. I can see him declining before my eyes and I’m just finding...
Hello I've just had confirmation that I have CLL. I'm on watch and wait. Do I tell my adult children? My brother? I don't know what to do for the best
Hi there, Diagnosed with CML 3 weeks ago and been on Imatinib for 2 weeks. Initially no side effects but now started with quite bad knee pain. Just wondered if anyone who has experienced the same can give me some hope that the pain won't last. ...
Hi. I was diagnosed with hairy cell leukaemia last October and have since undergone cladribine treatment twice. Awaiting bone marrow biopsy to see if I’m in remission anyone other ladies out there with this condition? Love to swap notes
