Hi,
I'm new here, so apologies if this isn't the right place for this.
I am currently going through the process of figuring out if I have leukaemia with my GP and I was just wondering what your symptoms were, and what your blood tests looked like if you were diagnosed?
Did anyone have a normal/unconcerning blood test result but still have leukaemia?
Did anyone have to press their GP for a referral for a biopsy?
Apologies for all of the questions, trying to best prepare myself and be realistic. If you feel comfortable sharing your story, I would be incredibly grateful.
Sorry to hear you are having tests to see if you have leukaemia. It must be a difficult time for you.
I was diagnosed with Acute Lymphoblastic leukaemia in September 2012. My symptoms started around July 2012. I was feeling a bit dizzy and also a bit out of breath. I put it down to more computer screen time and perhaps a bit of hay fever.
Then I went away abroad in late August and I started to become quite out of breath and had chest pains when I exerted myself.. Early September I had booked to see my GP on a Monday but the week before I got a terrible headache and went to my local A & E.
They ran bloods and my red blood cell cunt was very low and my white blood cell count was incredibly high. They immediately gave me a blood transfusion as my haemoglobin (Red blood cell) count was around 4 (normal is 14 - 18). The next morning they diagnosed the leukaemia and I was transferred to Barts in London
The symptoms for the different types of leukaemia are all different of course, so I can only comment on ALL. 10 years on, after a stem cell transplant in May 2013, I am still doing fine.
Hopefully your GP will get to the bottom of the diagnosis quickly for you.
Paul
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
Sorry to hear that you are having tests with your GP. It must be a difficult time for you.
I was diagnosed with Acute Lymphoblastic Leukaemia in September 2012.
My symptoms started in July 2012 and I was having dizzy spells and I was slightly out of breath. I put this down to more computer time at work (did I need glasses?) and also perhaps I had hay fever.
I went away in late August abroad and became more breathless, dizzy and had some chest pains (more of a burning sensation).
I had booked to see my GP on my return but a few days before I had such a bad headache I went to my local A & E. They ran bloods and found I was anaemic and my white blood cell counts where very very high. They gave a blood transfusion straight away and by the next morning diagnose leukaemia and transferred me to Barts In London.
Now almost 10 years later IO am doing fine. I had a stem cell transplant back in 2013. There are many forms of leukaemia and they can present differently. Hopefully your GP will get some answers, and give you a diagnosis and hopefully it wont be leukaemia.
Paul
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
