Hi...introducing myself. Female 76 recently diagnosed with blood cancer (high risk MDS presenting as a Pancytopenia) prognosis weeks/months....any advice / tips please ....!?

Hi Mindovermedicine and I am sorry to read this…. I am Mike and I help out around our various blood cancers groups……. I have been in my rollercoaster with 2 rare types of Lymphoma for 25 years now…… so have no first hand experience that can help….

I am not aware of any members in this group who are in the same position as you…… but you may want to join and post in our dedicated Living with incurable cancer - incurable patients only support group as you most likely will connect with others who are navigating the same prognostic pathway.

The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.

Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

((hugs))

Thank you for yge 'links' will follow up......