CLL in 40’s

Hi Crispin you may want to join our dedicated CLL, SLL, HCL support group.

This is going to sound very confusing but Chronic Lymphocytic Leukaemia (CLL) is seen in the same light as a type of slow-growing (Low-grade non-Hodgkin lymphoma or indolent) non-Hodgkin lymphoma!!!....... and not in the same light as most other Leukaemias. This is why we have a dedicated CLL support group as the journey is very different.

I have lived with a low grade NHL for over 23 years, diagnosed at 43 and now living as healthy a life as any 67 year old can live.

Join the group and copy and paste this post into a new thread and we can talk more.

Hi Chrispin

My partner was also diagnosed with CLL in Nov 22. Such a shock as, though not as young as you, he too had been very active and fit. Worked in Afganistan till 2v ears ago were he ran half marathons in 45 degrees heat, played football all over the world for the RAF for 22 years and still playes for his sons team on a Sunday who are half his age. He's also been a vegitarian  for 34 years so it goes to show it can strike anyone even, like you, the very fit.

We are also coming to terms with this diagnosis but all I can say is keep positive and take heart that most people seem to live with this condition for a long time.

Janx

Thanks for the reply Janx. Like you, my wife is probably finding the news more difficult to deal with than I am. We’re trying to work out when to tell the kids, but figured we’d wait until the results of my scans etc. Here’s hoping I have many more miles on the clock yet!!