Please please can someone talk to me

  • 3 replies
  • 13 subscribers
  • 218 views

Hello, 

I am currently so terrified. My father has been ill for the past month. Chronic fatigue to the point he’s sleeping all day, low appetite, urinating a lot, blood and protein in his urine, night sweats and a new rash on his inner leg.

He went to the doctors this morning for a blood test and the drs said they’ll call him back tomorrow.

I know EVERYTHING is pointing towards leukaemia and to be honest i just don’t know what to do or how to act. Im so so scared. I’ve already phone Samaritans, spoken to the MacMillan helpline to try and get out my anxieties. Is there anyone that can talk to me please. I’m so scared and feel so alone. My dad is the greatest man I’ll ever know in my life.

  • Hi and a warm welcome to this corner of the Community although I am sorry to see you joining us and to hear about your dad’s ongoing diagnosis.

    I am Mike and I help out around our various blood cancer groups. 

    For some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my blood cancer  ‘type’ is different from Leukaemia I most definitely appreciate the challenges of this journey rather well……… and I will add that our daughters were 14 and 18……but I went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 70 at the end of this year and as a family we celebrated 9+ years since my last treatment and I am living a great life at that.

    There are over 100 different types of blood cancer and Leukaemia’s are just one of the groups…… the symptoms your dad has could actually point to a good number of many of the 100 different blood cancer types not just Leukaemia…… but could also point to other health conditions that are not blood cancer retaliated.

    I would guess that you have been frantically searching Google….. unfortunately you will get 1000s of answers but only a few correct answers.

    If it is a blood cancer including many of the types of Leukaemia’s these are very much treatable.

    Take tomorrow as it comes and look fir a plan to be put in place to deal with this.

    Always around to chat ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi, thank you so much for your reply!!

    you’re right I’ve been searching over and over on Google for hours!! All of his symptoms are pointing towards Leukemia and I feel it’s the end of the world. That may sound dramatic.

    I’m struggling to calm down and I get rushers of panic every so often when I think about it.

    It’s like your whole world has fallen apart and my mind goes to the worst case scenario immediately. 
    I just can’t imagine him being so sick and I’m scared what’s going to happen.

  • My very wise Cancer Specialist Nurse (CNS) of many many years kept reminding us (me, my wife and 2 girls) that we only get concerned once you are actually told there is something to be concerned about.

    Over my 25+ years on this cancer rollercoaster I have had many many tests, scans, biopsies……. I have been diagnosed with and treated for 2 very rare types of Lymphomas. I have also been diagnosed with Asbestosis…….

    But I have also had many false alarms being tested for suspected Prostate, Bowel and Lung Cancers……. as well as suspected diabetes……. but if we had not followed the wise advise from my CNS we would have loved a miserable 25 years.

    Resist Google as you have been clear foundations was to make a clear search….. all you will do is go down rabbit trails and feed your anxiety….. and anxiety will make you ill.

    Lets look for clear information to become available soon ((hugs))

    The amazing Corrie Ten Boom once said….

    Worrying is carrying tomorrow’s load with today’s strength - carrying two days at once. It is moving into tomorrow ahead of time. Worrying doesn’t empty tomorrow of its sorrow, it empties today of its strength

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge