i hope you don’t mind me popping over from another blood cancer (myeloma) as I saw your question and it is directly relevant to myeloma.
Effectively, the term “treatable but incurable” means that unfortunately you will never be “cured” of the disease (at least not based on current available treatments). However, the disease is considered treatable - meaning that there are treatments out there which can stabilize the disease, put it into remission for a period of time, etc. There are some diseases which are incurable and unfortunately not treatable. This means that there is nothing available to stop the disease progressing or to put it in remission for a bit. Then there is terminal, which is effectively saying that the disease is expected to kill the patient in the not too distant future.
So the way I look at it, for sure “treatable but incurable” is a horrible diagnosis to get, it means that you are very unlikely to ever be cured of the disease. However, being classed as treatable is good, because it means they can do something about delaying progression or they can put it to sleep for a bit. The other positive is that they may be able to keep the disease at bay long enough that a cure might be found. I don’t know anything about your particular disease but in the 4 years since I was diagnosed with an incurable disease, there has been much progression in treatment meaning people can live a long time with an incurable disease, and so I am really hoping you will find the same.
I do not mind at all in you popping over, as you put it, thank you for a good explanation of what I was asking, many thanks, and I hope you have more good days than bad your self.
