It sometimes takes years for the penny to drop with me. But after criticism of result accuracy in an over-worked hospital pathology lab recently, the report said that cancer was difficult to diagnose from biopsies. Sometimes cancer cells couldn't be seen but it didn't mean they weren't there That's why my biopsies said "indicative" or "suggestive" of.
Saw a new haematologist this week. She said my blood was fine until I said how weak and tired I felt. Then she noticed my potassium was low. So gave me some tablets to dissolve in water and warned me they tasted horrible. So I put them in Tesco cordial and, what with the fizz, it tastes a bit like lager and blackcurrant.
I asked the specialist to check what my % of HCL was BEFORE chemo. (Less than 5% after). She could only find reports after chemo. Then she found one for 3% dated 2007. I said amazing because I didn't see the specialist till 2008. Then she found the date at the top was 2010.
So I'm very tired all the time just now. All I want to do is go back to bed and stay there for the rest of my life. Hoping the tablets will change that.
Hope the rest of you are fine and doing cartwheels up your front path.
So didn't they tell you to eat tons of bananas, they're supposed to be high in potassium? Tennis players are always stuffing a banana or two somewhere...
Hope the tablets do the biz - guess we all feel knackered sometime, I'm ok walking on the flat but now seem to have an aversion to hills.... don't get out of breath, but my legs start to complain. And bike riding is harder than it used to be, though that could be with all the rain this year I've not been on it much. Who knows?
At least now we got a heatwave, June has finally burst out all over....
Hi all some info about the first hairy cell leukaemia (HCL) patient seminar in Europe. London Seoptember 20th 2014 The Royal Marsden in Partnership Hairy Cell Leukaemia Foundation is hosting this
Quite comforting to see that this is a very quiet thread. I was unable to attend the meeting mentioned above and can't quite believe it's well over a year ago since I received the invitation. How did it go and how is everyone on here?
I've not been a regular on the forum as I really try not to think about the traumas of a couple of years ago, but I've a check-up coming and just received macmillan raffle tickets so started reading when I logged in to pay for the raffle.
Glad you're ok. 2010 I had chemo but still feeling rough. Got a check-up end of Oct. Got a few black moles and skin growths but GP insists quite normal for an OAP. Got no faith in my local hospital. This is this week's local news story. Man in Medway hospital very ill - family told he had 2-4 hours to live as his kidneys were failing. Doctors said he should be put on an End of Life Pathway. This means no food or water till he dies. Family goes home and waits for the tragic news. Two days later, hospital calls - man sitting up in bed asking for drink of water and a sweet. Hospital refuses both until he has a swallow test. He passes and he's doing ok now. This is absolutely true. Maybe he'll change his name to Lazarus.
Reminds me of the old joke "My wife's at Death's Door - but the doctors will pull her through!"
Report in Daily Mirror (available online) that GPs are being set targets NOT to refer patients for initial cancer tests. If they keep below the target, the practice gets paid £1.40 for each patient on their books. So it could earn them a few thousand pounds.
Yet Cancer Research has been aiming a lot of their funds at early diagnosis.
Hello Are you still communicating. I had cladribine which finished seven weeks ago. My reactions came later and I have suffered a lot of pain which is now in a shoulder. I was not expecting this and to suffer so much and for so long.
Has anyone had pains in joints, muscles, nerve endings and bones and tendons?
Just tried to send you a long reply but it wouldn't post. So I'll keep it short. My shoulder pains went after I took cod liver oil supplement of my own volition. Doctors said I had arthritis and no NHS remedy available. Â I'm no doctor so you may prefer to check out the idea with a pharmacist first.Â
Now I'm going to press the POST button and hope it works.
