Adenocarcinoma Larnygeal Tumour

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Hello everyone,

I hope everybody is doing okay,

My brother-in-law has been diagnosed with adenocarcinoma of the larynx which we understand is a very rare type of cancer in this area. 


Would really appreciate any information that anybody may be able to offer on this.

Thanks all Pray

  • Hi Riri. I usually hang out in the head and neck cancer group. This one is very quiet. I've replied in case bumping the post up might let somebody new see it. I know there is a laryngeal cancer support group in the UK but for the life of me I can't find it. I'll tag a fellow Champ who is a laryngectomee. Perhaps he might know

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hello Riri

    I have looked at your post several times and tried to look up any info, as a laryngectomee myself the following Club may also help, I'm a member of the Club and they do have some useful information and stories

    https://www.laryngectomy.org.uk/

    You will also find out any possible local support groups from them

    Hope everything goes well

    Tony

    Community Champion Badge

    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink Laryngectomy and OC survivor 

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  • Thanks I knew somebody would know. Thanks 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Riri, 

    I too was diagnosed with laryngeal adenocarcinoma and the surgeon and other doctors were completely baffled. They just could not understand how these cells got there. They said they were gynaecological cells in my larynx and lymph nodes. They behaved as if this was new to science, couldn't be explained, and they didn't know how to treat it with chemotherapy as there was no chemotherapy programme for such a thing. I did get treated with chemotherapy, but I was told it was a case of throwing everything at it as there was no precedent. 

    If anyone has any information on this, I'd like to hear it. 

    Veron 

  • Maybe Adenocarcinomas of the larynx share bio markers with endometrial adenocarcinomas. Maybe that’s all it was? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Veron, 

    I hope you’re doing well. Delighted to say that my brother-in-laws experience has been positive. 

    Treatment was tough enough. Like yourself, they threw the book at him. 6 weeks daily radiotherapy with chemo every week. He finished treatment just before Christmas & the few weeks after that were tough but he had a clear scan in March & another last week. He also returned to work 2 weeks ago so life is very good at the moment, thankfully. 

    Wishing you well with your treatment. Stay positive, you’ll get there.