Cancer, Larynx, Glottis.

Hello, does anyone feel like I do that once treatment is completed that we are just forgotten about?? The Radiotherapy of 20 sessions over 4 weeks I went through were straightforward enough with no side effects until 5 weeks after treatment completed. On the 5th week I actually went back to work but after 4 days I almost collapsed with breathlessness and the aches throughout my body were almost painful. So I went back on the sick. That weekend I was having difficulty breathing and had a friend rush me into hospital. My neck had swollen to the point I was being choked! I was on the same night of admission transferred to another hospital where I spent the next 2 weeks. During that period I already had 2 appointments at The Christies one for scan the other to see consultant to discuss results of scan. BUT because I was in hospital those appointments I believe were cancelled by the hospital I was in with a view to renewal but which has never happened. Have you ever tried to contact Christies? The number I was given turned out to be their transport department. Now over the last week my neck is swelling up again but still manageable though I am coughing more. I feel the doctors are not qualified to deal with cancer has their answer these days is to refer everyone to A&E. Obviously should my situation become worse I will take appropriate action. At least I do have an appointment with head an neck department just over a week away and if not heard anything from Christies, can ask head an neck department to make enquiries. They can stick a camera up my nose to see whats going on. Macmillan have been a great help and I volunteer to to Bee-Involved but now feel I can't because of my health. I find no matter how much I wrap myself up and quite extensively I suffer more with fatigue and coughing fits so I now don't go out but for hospital appointments. Thank you for reading and I hope everyone has a better 2025