Hi. I’m new to the group, thank you for accepting me. My brother is 63 and has advance laryngeal which has spread in to his lymph nodes. He aspirated about two months ago so he was fitted with a PEG. About a month later he had a tracheostomy. I saw him today and he looks so frail and poorly. I feel I’m watching my brother die in front of my eye. I have this feeling of total uselessness as I can’t help him. I just wish I could take his pain away he has chronic heart failure so an operation was out of the question. He will start intensive radiotherapy on 20 December but I fear his body isn’t strong enough. I feel so awful. My big brother is dying. And there’s nothing I can do to stop it. I’m being the crutch for my family and have to remain strong for them but I’m screaming inside as I have no one to talk to. My husband was killed in 2013 on the M6 motorway in his wagon.
Hi Kakriska
So sorry to hear you are both going through this. If you join the carers only group you will find some support there hopefully
https://community.macmillan.org.uk/cancer_experiences/carers-only-forum
Also please do give the Macmillan support line a ring. A friendly voice is such a comfort at this time
0808 808 00 00
The lines are open 7 days a week from 8am to 8pm
You can chat online too here
https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/chat-online
The Swallows head and neck cancer charity has excellent carers support and their phone line is manned 24 hours a day by Sharon Curtis who is the wife of Chris a cancer survivor.
07504725059
Its a terrible place to be but you need to look after yourself.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
