Larangectomy re radiation

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Hi all 

I am just over a year out from having a larangectomy and a second surgery unfortunately this cancer is aggressive and I had a biopsy to see I could have immunotherapy unfortunately came back I can’t have it I was told I may be able to have palliative chemotherapy but will be two weeks on Tuesday and still no appointment made for me or contacted I am so worried as I don’t know how quick or slow it’s spreading and feel like they give up on me and feel so let down by them I feel sad also I am just 60 I have 6 children and 15 grandchildren and was clear for five years I have come out of there not knowing how long I have and so numb and confused 

  • Try to stay strong.  Pester them to find out what is happening.  Difficult I know but sometimes I think they deal with it on a daily basis so it becomes norm for them.  6 months ago my husband was told by a MacMillan nurse to go home and get his house in order.  Had only just met him on ward so had no idea how he would take it.  Sending hugsx

  • Hi there 

    Thankyou I can try and see if can find out anything it’s awful when this happens like you’re husband and not fair at all and I know there is no empathy and I do think same because they are used to it I will get someone to call as can’t talk and hopefully they will answer Addis not last week thank you again so scary