Hi all,
a 58-year-old friend was diagnosed with iwth Larynx Cancer. He is living in Afghanistan and hence has limited access to healthcare. So he went to India. There the hospitals are known to "overtreat" and put financial before the patient. So the family is confused what to do.
The question what do you all, who had to suffer this cancer or who are family members of people who went through this suggest? We know that Chemo helps, but not all the time and we don't want to put him through an aggressive treatment which later turns out to be palliative.
Kindly read the diagnosis and please feel free openly to say what you think. Thanks a lot!
The study reveals a large irregularly lobulated altered signal intensity mass lesion involving the right supraglottic & glottic region of larynx involving the right true and false vocal cords as well as posterior and anterior commissures, right aryepiglottic fold, pyriform sinus, laryngeal ventricle and encroaching into the adjacent paraglottic space. The left aryepiglottic fold also appears thickened with effacement of the pyriform sinus. The mass is seen to cause severe narrowing of the laryngeal air column with deviation toward left side in the glottic region.
Superiorly it is seen to abut the epiglottis on the right side. Inferiorly it is seen to extend up to the subglottic region. The mass is seen encase and involve the right cricoarytenoid joint which could be separately visualized. Posteriorly, the mass is seen to cross the midline and extend towards the left side.
It shows an acut restriction on DWI and ADC mapping. It measures 3.2 (AP) x 3.4 (TR) x 4.8 (CC) cm in size.
Multiple enlarged bilateral submandibular, right upper & mid jugular cervical lymphnodes are seen., the largest is seen in the right submandibular location measuring approx. 3.2 x 1.9 cm in size. On injection of contract, these nodes show nonenhancing necrotic areas within.
The epiglottis, glossoepiglottic fold, and bilateral vallecula are largely unremarkable in MR morphology. The muscles of the tongue as well as the soft tissue planes are normal. Both the internal and external carotid arteries on both sides are normal in course and caliber.
Salivary glands are normal. Thyroid lobes are normal
Spondylotic changes are seen in the cervical spine in the form of osteophytes and disc desiccation.
Underlying muscles are normal.
Impression:
Large irregularly lobulated homogeneously enhancing mass lesion involving the right supraglottic & glottic region of larynx involving the right true and false vocal cords as well as posterior and anterior commissure, right aryepiglottic fold, pyriform sinus, laryngeal ventricle, adjacent paraglottic space, right cricoarytenoid joint & also causing severe narrowing of the laryngeal air column - probably suggestive of malignant mass - Carcinoma larynx. Multiple enlarged necrotic bilateral submandibular, right upper & mid jugular cervical lymphnodes - likely metastatic.
Thanks a lot for your opinion and help! We are grateful!
Hi Ad100, welcome to this site, im sorry that i do not understand all that technical language as we are not Doctors here, but people who have been through cancer one way or the other. Can you please tell us what treatment has been offered, for example, surgery, radio and chemo or just chemo or radio on its own. I personally had my larynx /voicebox removed, so i no longer speak. Can you please come back with their diagnoses plan and we will be willing to help if possible, best wishes, take care.
Chris
Hi Chris,
thank you so much. The suggested therapy is to start immediately with Chemo followed by surgery. They said that only after the operation they will know how much they have to remove. They did not say anything about radiation.
is the tumor not very large and the fact that it spread already at minimum to the lymphnoses which seems to be metastatic.
The family does not want to put the patient through all of the torture if the prognosis would not be good at all.
Thanks a lot do for your opinion and help.
Thanks Andi
Hi Andi,In England we normally trust the consultant and their decision on the treatment as its not really to do with money over here and they would not do an operation if they felt it was a waste of time or would make matters worse. Normally they do the chemo first to maybe shrink the tumour or to stop it spreading then they will operate to remove the tumour. I never had the choice of chemo or radio as i had had it after my first operation for mouth cancer, so they had to remove my larynx. I have never refused treatment or surgery as i trusted my consultant and his team , thankfully it all worked ok for me in the end. I hope this is of some help, take care .
Chris
I am no doctor and cant give you a medical opinion. What I can say having had all the treatments is each one makes living a lot harder afterwards. It is not a cure in the normal sense but just a way of keeping you just alive. I cant eat or drink normally, it is all hard work. Breathing is difficult and so is sleeping sitting up with a peg and everything else. One is a different person. Not being able to talk is the least of my problems. So I say not just because of the cost have nothing unnecessary done. Before you do anything at all make sure you ask a few doctors if it is really necessary.
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