My husband was diagnosed with ureter cancer in May 2024. We were told it was terminal. He was fitted with a nephrectomy in the left kidney, They couldn't do surgery because he wouldn't survive it and chemo wasn't an option either. Since his diagnosis we have only seen the urologist when the nephrectomy gets blocked, they showed me how to flush it so he no longer has to go to hospital. He has the tube changed every 3 months. With the terminal diagnosis we only have our gp treating him for pain. My husband won't discuss his diagnosis at all. He is getting more symptoms eg: weight loss, loss of appetite, sleeping most of the day, confusion and forgetting things. He now has frequent falls which mean he can't be left alone and has now started having diarrhea frequently. I just feel lost because there is no one I can talk to for advice on what these changes mean and how best to help him.
