New Diagnosis Of Kidney Cancer

Good evening, I have been through this situation myself when I was diagnosed in September 2022, feel free to ask any questions you may have!!

Thanks for replying, still in a bit of a state. I will hopefully be thinking more clearly in the morning and have lots of questions for you then. I really appreciate your offer of help.

I know what you mean,it's as if the world falls out from under you when you hear the dreaded C word.i will check on here tomorrow to answer for you,

I hope you are ok, and feel free to get in touch with any questions you may have.

Hi again    I suffer with anxiety too so know how you feel. I think that when these things come our way, we adapt and are able to get through it no matter what. It's normal to worry, even though worrying doesn't change the outcome. From what you've said here and in my thread that you replied to, things don't sound too bad at all. So hold onto that positivity, that while it's a setback, this small tumour is very curable and likely not to cause any further issues.

I've had about a 6 week wait for my op, which is happening on 5th September. I hope your Husband's surgery is arranged very soon, so you both have less time to worry.

Dear MathsLady, 

so sorry to hear this sad news about your husband. I hope he's doing ok mentally/emotionally as I know it can be quite difficult for both of you to process this information! Here if you need to vent, ask questions or for general support. Lots of love.  I have had my kidney removed 9 weeks today actually, I was just coming out of theatre (well my husband received the call) I was totally out of it! X more info on my profile 

You've just described  the situation I found myself in this time last year. My tumour was bigger though. I eventually had the kidney op at the end of February after an initial attempt to shrink it with immunotherapy didn't work. My op was a complete success though, and I'm functioning perfectly normally on one kidney. ( I did develop post operative sciatica, though that's another story). I'm now on cabozantinib as a " mop up". After 4 months of it I'm tolerating it pretty well, have been away on holiday, and have returned to work part time. Try not to worry, it sounds like it's been caught early and you are looking at a tough few months, but if your consultant says there's a cure  then grab it with both hands!  I spent two nights in hospital post op and was home on the third day. Very happy to answer any questions if you think that would be useful. 

Hello Arney, thank you for all of your replies. Could I ask you how old you were when you had the op? The consultant said that he would have robotic surgery and would be out the next day, seems very soon after such a major op.  How long were you in hospital for? He was also told to take it easy for 6 to 8 weeks, again this doesn't like much. How long did you have to rest for and also how long was it before you felt "back to normal"? We are hoping for normality by the Spring. 

Thanks for your support.

Thanks for replying, he was told that his op would be done within 6 weeks, so about the same as you. We are trying to be positive and are thinking in terms of by Spring hopefully it will all be over except for routine checks. 

I hope that your op goes well.

Thanks for your supportive answer. How are you feeling 9 weeks post op? Are you pain free? Are you back to normal activities? What about energy levels?

Have you had any check ups since the op?

I hope that you are progressing well.