Kidney cancer stage 4

Hi -  there is definitely hope.  I am stage 4 and treatable.  

When you read the side effects of immunotherapy drugs it does sound alarming.  The sickness, the diarrhoea, fatigue, itching. . . . and everything else they mention which I've forgotten because it's 18 months since I read the info.  You wouldn't be normal if you weren't alarmed.  However, the drug company has to tell you all the possible side effects, even the ones that only a minority had.  What they don't tell you is that no one gets them all.

What immunotherapy is he going on?  Some are harsher than others.  Ipilimumab & nivolumab is a common first line therapy which is what I'm on.  Everyone is different and there is no guarantee that one person's experience of a drug will be the same as the next persons.  

Everyone reacts differently to a cancer diagnosis/ treatment and there's no right or wrong way to approach it.  I don't discuss my treatment with anyone and even if I wanted to it wouldn't be my family.  They don't have cancer so they're not qualified to comment!  I really relax most talking to other people with cancer because they understand the situation.  

This group on the forum might be appropriate for you:  Supporting someone with incurable cancer forum   Wishing your brother all the best for Thursday. 

Thanks for your reply. I'm not sure what drugs they will be using. I'll take a look at the link for supporting someone with cancer. I think I'm so scared for him and want to protect him.