Less than a week to go to consultant appointment

1. Hi  just make sure to write down any questions your partner ant you have 
2. . Please get as much advice of doctor 
3. Hopefully its good news if not we are all here to support you and your family. 

Good luck please let us ken how you get on . 

My Urologist (he was fab) did masks-off chat.  I am convinced his driver was to make it as real and personal as possible with body language.  He also invited me to record the meeting on my phone.  I'm an avid note-taker so I declined and got my notepad out instead.  New pencil makes all the difference in my opinion!  

You could ask whether a biopsy would be required.    You could ask to see the scan and get talked through it.  We did this (he suggested it).  Take a pic perhaps?  Actions - what happens next and how long will it take.  If you are being referred elsewhere get the name of the consultant.  You might need it in a few weeks time to chase their secretary.   You should get an idea of likely treatment, perhaps some options to think about.  I wouldn't bother asking about prognosis because it's guesswork and outdated stats at this stage, but your choice.  I asked and I no longer believe my prognosis for these reasons and the fact it didn't take into account how my body would react to the treatment.  

One thing I wish I'd done, is evicted the nurse at the start, but that's just me and my preferences.  She bought zero value to the discussion and wasted my time afterwards!  When I walked in the the meeting room and saw her my immediate thought was "oh! I do have cancer then!". 

I've never seen my urologist since that day - and probably won't ever again!  It was a text book meeting though, I have a lot of respect for him.  He even offered to meet my family afterwards and explain it to them.  

Where/how to follow-up with questions when a crucial question pops into your mind at home.  

KC is slow growing, try and remember that as some waiting is inevitable.   Of course you will feel apprehensive, but things are moving forwards now. 

Many thanks Fermer.

Great advice, I have told the wife to write down any questions she has, she is not dealing with things so well at the moment 

Thanks Mum

Really good advice.

A new pencil always makes life better (I treated myself to a sharpener as well)

I guess the most important things are whatever it is you want to know. !

My meeting was 2 weeks ago, I was a bit disappointed as I didn’t see the consultant but his assistant. I saw the scan and she explained it was almost certainly cancer, and that  there wasn’t really another option but removing the kidney and that was it really. No support afterwards, but fortunately I was fully expecting that prognosis so it didn’t really come as too much of a shock. I’d taken my note book but never got chance to write in it! I suppose a lot will depend on who you speak to and how the meeting goes. I Hope you have a better experience and better news. Having a medic with you should help, I’m sure they’ll be able to talk you through it afterwards. Good luck! Incidentally I got much more practical help and support ringing MacMillan afterwards, they answered all the questions I’d planned to ask at my meeting.