New diagnosis

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Good afternoon all! I hope everyone is well.

So on April 4th id rushed into hospital wish a suspected PE and/or pneumia due to the severity of the pain I'm having just under my ribs into my back and reduced breath sounds in my left lung, breathlessness, sweating spells. 17 hours later I'm told it's not a PE but the CT has just picked up a mass on my left kidney that is pushing my organs resulting in my left lung not being able to inflate. 

40 hours later I'm in for another contrast CT of my left kidney and surrounding area then reporting straight back to the SDEC consultant.'

Probable new cancer diagnosis' is on the report and my world went crash. 90% likely due to the area and presentation - I don't know what that means but the doctor is telling me the words... Referred to MDT, urology will lead, appointment in a couple of weeks, get a notebook cos I'll have so many questions etc etc.  No sign of spread so they'll just focus on removing it but they need the MDT and then they'll see you too agree a treatment plan

68 hours from a PE to that 6 letter word.

Monday is meeting my consultant. I want to argue to just get it out, get it gone, it's causing breathlessness, pain, sweats, friends and family are commenting how unwell I look, but I'm scared.

The closer that appointment gets the more torn I feel yet I know I'll have to be my biggest advocate and I don't know how when I just don't want to be in this position.

No-one seems to understand why I'm torn, or my obsession over the right notebook - it needs to be the right notebook

 

 

 

 

  • Hi RT37UK

    Reading your post, it is clear that you are still 'in shock' from your unexpected diagnosis, which is not surprising!

    Whatever you do, and whatever colour of notebook to use, try to have someone with you when you have your first meeting with the consultant. This person can write things down, remind you of any questions you might have forgotten to ask, listen carefully to what is said. A friend did this for me when I saw my oncologist, and it was really helpful to have another 'listening ear' in our conversation.

    I wish you well with the consultation, and hope they have a treatment plan that you feel happy with!

    Once the initial shock of diagnosis has worn off, and you get into a pattern of treatment and/or surgery, most people find it all gets easier to deal with. Best wishes!

  • Hi Candysmum,

    Thank you. I'm not sure the shock is decreasing. I think I was hoping I'd walk in and it would be a bad dream. 

    Ihave been referred to another local hospital as they have the robotic machine so they're going to try and remove it by that (partial necropsy) before open surgery due to my age and recovery time.

    It is 3.8cm and obstructing my lung inflating which I knew but it's appeared in the last 2 years so they're moving quickly.

    They've confirmed it is 95+% cancerous but we can remove it and there's no current indicators of spread but they'll likely take a biopsy of my lymph node also just to be sure.

    So waiting confirmation of my preop appointment which will be this week or not then away we go