Just coming to terms with being told I have terminal cancer

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I was told I had kidney matastatic cancer on 28.3.23. I was by myself in the hospital when a doctor told me. I was admitted to hospital to be put on a drip for two days to reduce my calcium level. I stayed in hospital for a further 2 weeks wait for a biopsy to be done. After being discharged I have to wait for results before speaking to an oncologist. I feel like I'm in limbo at the moment. I have been on Google and know it doesn't look good but I just want some sort of prognosis.

  • Hi

    I totally understand where you are coming from and there's loads of people across the forum who have been in the same situation.  Right now is the worst it will be as you already articulated, because you are waiting for results and appointments but more importantly a way forwards.  It takes time to come to terms with the situation too.  

    I'm surprised you called it "terminal".  As treatments have advanced so much in recent years, incurable and treatable are more generally used as they are more representative of the medical aim - to control the cancer.  Many people in the  Living with incurable cancer forum - patients only group have received a prognosis but have gone on to out-live it, significantly so.  I was also keen to learn a prognosis and so I asked my Urologist and the oncologist registrar.  I won't be asking again because timespans after a cancer diagnosis are generic and based on statistics from medical approaches at least 5 years old.  (A new treatment  trial is 5 years).  They can never account for how your body is going to adapt to the treatment so the advice at diagnosis can only be a best guess.  I don't plan to ask again.  Instead I will read the room, and have quality discussions with my oncologist.    After my biopsy, I went to oncology a week later and they had the results waiting for me there.  I think my urologist requested both at the same time to minimise delay.  I hope yours is as quick.   Can you chase oncology and see if they have your referral yet?  My urologist told me the consultant's name and hospital he was referring me to, but I don't know whether that is standard across the board.  

  • Thank you. Your message has given me hope. Positive thinking.