New to this

Good morning

I am so sorry you are facing this major life challenge. On January 16, 2023 I went to the E.R due to severe anxiety. But I thought it was more. After several test, I was told I had an 11 cent. Mass on my left kidney. I had an open radical nephrectomy on February 14, 2023. But I was told it was not Cancer. The mass was 7 pounds. I am still recovering. More psychological discomfort than physical. I plan on returning to work in a week.

Thanks so much for sharing. Welcome to the group.

I we t in with thought was blood clot by the end of girst night in hospital was told cancer in braain and widespread upper body.  . 2 weeks before first lockddown I had a large tumor and a kidney removed . Back in hospital 4weeks ago þo find out cancer was back So I  undrrstand what yourr going through.  Take good care of yourself. I  have been talking to a few people through this macmillan on line and found great support 

2 weeks before first lockdown I had the operation to remove right kidney andca large tumour.  Operation went well must admit I was sore for a ehile after as I was on operation table for 8hours as my tumour was large but good news was it had not attached to any other organs . Only thing I would say is you feel likee you have the feeling like you have a air pocket were they had removed kidney and tumour.  Hope all goes well judt remember to give yourself time to recover from operation  .  You.may be lucky and they can do it keyhole which woild mean you recover a lot quicker than open  surgery.   Good luck 

There are plenty of people in this forum who have had radical nephrectomys me included. 

So you should be able to get any specific questions answered. Best wishes.

Hi I had a radical nephrectomy 5 months ago 10cm tumor ,I think that was the worst thing for me getting my head around it felt so unreal it probably took about 3 months to come to terms with it ,fortunately it was contained in kidney so just regular scans now .Stay positive and look after yourself  .Good luck

Hi!,

I was diagnosed with cancer in both of my kidneys last month, within 4 weeks I have had scans, seen a specialist and also had my left kidney removed (I had a 9cm mass). Even though they didn't actually use the 'C' word at fist I knew something was wrong because of the speed that everything happened at. It was only after seeing the surgeon and then being introduced to two nurses who would look after my care and also given a Macmillan folder that I knew for definite that I had Cancer. It is a huge shock to the system but the level of care and support I've had (especially from Macmillan) has been amazing.

I had my operation done Robotically via keyhole, I was in hospital for 3 days and I'm now recuperating at home, it is a BIG operation (that's what everyone has continued telling me) so don't expect to be up and around like your old self any time soon, my op was just over 2 weeks ago and I'm still sore and tired all the time. I am however feeling loads better than I was.

I am waiting to go back and see the Dr for my 6 week review and to see what the verdict is on the test results.

Hope all goes well for you, as previously mentioned there are lots on here who have already gone through this procedure so please ask if you have any questions.

Hi sounds like what happened with me I went to a n e on the 25th January 2023 with serious pain in my left side was sent home saying it was gastric. Went to my gp the following Monday who said my spleen was enlarged. After more blood tests,2 ct scans and an ultra sound they have found a 9cm lump attached to my left kidney. I'm now booked in for open surgery on the 11th April. They have told me it's 90 % likely it is cancer but confident they can remove it all.

Please take care of yourself . Give yourself plenty time to recover after your opp. . Sending you a big hug and reminder your are not alone going through this we are all here to support you. 

Hey Jonah

Welcome aboard!

Much like you I had a kidney removed and had to wait a while, it really is a weird limbo feeling. It has taken me months to fully process various updates so far, and it didn’t feel “real” for a lot of that time. It’s absolutely normal and there’s no “right” way to react…..don’t worry, at some point it’ll all settle in.

The kidney removal isn’t so bad, weirdly. Recovery is a bit rough for a little while but nowhere near as bad as I feared it would be. You’re gonna be fine :)

I thought I would update my first post seeing as a few things have happened now, I had my first meeting with the MDT and was told that due to my weight (admittedly I am on the heavy side) they will attempt Keyhole surgery but most likely will end up being fully opened up so they can remove my Left Kidney.

I am now due to have an anesthetic pre-op assessment next week, having also been diagnosed with COPD and other lung problems they tell me that there are risks but then I guess that's true of all anesthesia but will have to see what they say at the assessment.

As of yet am still kind of feeling numb as nothing seems real yet and I still have no idea what I feel about all this no matter how hard I try, It really is like a dream or should I say nightmare but for now, am still kind of on hold till this is settled one way or another.