Hi! recently diagnosed and awaiting surgery

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Hi everyone,

About four weeks ago I got a phone call out of the blue by a Dr telling me that an MRI scan I'd had done on my lower back (I have a bulging disc) had shown up something unusual with my kidneys and could I go for a CT scan so they could determine what it was. I had the scan within a week and a few days after that I was called into my local hospital. The Dr explained that I had a very large cyst on my left kidney and also 3 small ones on my right kidney, he said that the left one and one of the ones on the right where in fact cancerous, I got a letter through the post a few days later confirming that I had Renal Cell Carcinoma. I then had to have a meeting with the surgeon who explained that he was going to remove my left kidney by robotic laparoscopy and that the right one would just be 'monitored'. To complicate matters I have a long standing blood disorder (APS) that means I'm on blood pressure meds and also Warfarin, as such they're making me stop my warfarin 5 days before surgery and also one of my blood pressure meds on the day of surgery. I'm going in for the surgery on Monday and I'm not afraid to say that I'm terrified, I've had dozens of surgeries over the years but nothing as major as this and the APS only complicates the matter as I'm already at risk of blood clots, Don't suppose anyone's had this surgery with a clotting/blood disorder?

  • Hello Tomcat, although I haven’t any experience of the blood clotting complication that you mentioned, I did just want to say hello and also acknowledge what a shock this must have been for you. Many of the people on this group have been having tests for one thing and the scans picked up something else.It sounds as though the hospital have moved quickly, which is great, but can be a bit daunting at the time.I hope that all goes well for you with the surgery.

    Do give macmillan a call and discuss your concerns.regarding the reduction of your meds….they may have given you a clinical nurse specialist who can support you too. 

    Let us know how it goes….we are a very caring group. 

    Big hugs, Jules xx

  • Hi Jules, thanks for replying. Yes, it's most definitely been a shock, I wasn't told for definite at first that it was cancer, that came later but the urgency with which everything was carried out kinda made me realise that something wasn't right. The one thing I can say I've done is speak to Macmillan, they have been fantastic, I've spoken to them so many times already. As far as my meds go I've had to sort it out myself!! My surgeon never mentioned anything about swapping to another blood thinner so I rang my Hematologist at Liverpool and he did the leg work for me, I'm now being given another medication for a few days prior to surgery, still extremely annoyed that I had to sort this out myself though.

    Will do my best to keep everyone updated after surgery.

  • All the best for Monday.  Plus, well done for doing their job for them.  Everyone who has had nephrectomies says the anxious times before hand were worse than the experience.  I'm not qualified to have an opinion, but it's hearsay from reading many posts on here.  Look forward to reading your update when you feel up to it.