Kidney Tumour

2 replies
69 subscribers
567 views

Hi, I'm a 29 year old male. For the past few months I have been getting pain in my stomach but especially my side and back. I was also struggling to urinate so went to doctors who done a urine test and gave me cocodomol/tramadol for the pain. My urine test came back normal he said so he referred me for an ultrasound for possible kidney stones. I had my ultrasound 4 weeks ago and the day after I got a call from my doctor to say they found a 3.2cm lesion/tumour on the upper pole of my left kidney and I would need a CT scan/biopsy to determine what it was and if it was the dreaded cancer. I had my CT scan a week ago and I am now waiting for results. The past 4 weeks have been the worst time of my life as I have a 6 month old baby boy and only got married recently. I took a few days off work at first but then returned to take my mind off it but find myself making silly mistakes at work now. I find it impossible to not worry as much as everyone tells me do so. My only symptoms are pain in kidney area and also stomach and back. Dizziness and a feeling of jelly legs. And urinating a lot more but sometimes difficult.

I was wondering has anyone else felt the same as myself and also has there bloods been okay but still had cancer?

Also if you have been unfortunate to have cancer, what happened next in terms of treatment and how did you get on?

Thanks in advance to anyone who can share some help or information.

Mmum over 1 year ago

Hi there jamesj123 and sorry to read your story.

One of the symptoms of KC can be blood in the urine. You don't have that. Tick.

Yep, we don't wait well in this club. Try and take it a day at a time, then it's the weekend before you know it, then that's another week closer to the appointment/results. Going to work for the distraction is a good strategy - I've done that too.

The CT scan will usually show whether it's cancer (mine did) and if it's spread. If it's local (not spread) then if it's large enough they may remove the tumour with surgery, or wait a bit and monitor until, or if, it's bigger because larger tumours are easier to remove.

Some people are given the choice whether to remove a tumour or not, along with the likelihood of it being cancer. Sounds like a nightmare scenario to me!

If it's spread outside the kidney then a common approach is to try and control the cancer with immunotherapy drugs. This is what I'm on and it's going well.

Even if it's cancer, there are fantastic treatments available and new ones emerging all the time so it's not all doom and gloom. Many people on here have lived for many years after a KC diagnosis. Your age has to be in your favour.

If you don't have a follow-up appointment scheduled for your CT scan in a week or two I'd phone the consultant's secretary and chase.

jamesj123 over 1 year ago in reply to Mmum

Hi Mmum, thanks for the message. I hope yous are coping and doing better on your journey. I guess the worst part is the unknown of what it is and what can be done. The waiting kills you. Take care

More from this forum

Kidney Tumour