Lymph nodes

FormerMember
FormerMember
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Hey, 

my mum was diagnosed with kidney cancer in May, she had a scan which showed swollen lymph nodes and was sent for a biopsy. They was unable to do a biopsy due to them being to small and they said this is a sign the cancer is confined to the kidney. The surgeon wanted to be double check so they did a CT scan with dye and it only hightlighted the kidney, they was satisfied it was confined to the kidney and removed it on the 13th of August.

in the surgery they noticed the swollen lymph nodes and said they looked swollen again, but we did already know this. Now we have a phone call from the surgeon on Friday to discuss if they will just do a scan in 3 months to check the lymph nodes or start chemo just in case. 

has anyone had experience in this? The hospital says the only way to determine secondary lymph node cancer is through a biopsy but they are to small to do that. Anyway we will find out the next step Friday but just find it strange because they don't have any more information as they did before the surgery but prior they was happy that it was confined to the kidney.

  • Its very confusing I went with bad shoulder to arthritis clinic she just happened to notice I had clubbed fingernails which concerned  her she sent me for a scan and I received a letter to say I had tumour on my left kidney couldn't believe I found out by post following week was told large tumour and had spread to both my lungs  I was devastated  later went to cancer centre in Liverpool he said no only little thing on one of my lings but to small for biopsy had left kidney removed been fine with every scan until last week now saying something on my remaining kidney and 2 little things on my chest got to wait now another 3 month  its just the wait  I have to try to tell myself if it was bad they would do something sooner plus my doctor doesn't get any results for about 3 weeks after scan sorry for going on just makes me bit angry waiting I really hope all goes well x

  • Has my left kidney removed now saying got 2vlymph nodes in middle of chest said he will know more on my next scan in 3 months the waiting is terrible and had severe back pain since kidney removal  this waiting drives me msd mental health is worse  hopefully things will get better for everyone 

  • Yes  "scanxiety" is a known thing on the forum.

    I've had  nodules,on my CT scans for years. The scans just monitor them. I have scans every 3'to 4 months  

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Very true its the waiting not knowing is the worse bit especially after scan waiting toughy another 9 days for results thanks for replying