Ct results

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Hi

New here.my partner has been.feeling il for about 18 months his bloods have all been abnormal ..hes been anaemic and lft were 3x the upper limit...he doesn't drink.alcohol

It was assumed he did despite many protestations to gp.

He had a scan July 2020 during lockdown normal findings .despite him feeling and looking dreadful and being incontinent of urine frequently and severe nausea. 

He was referred for another scan this march he got a phone call last week to say they found something on his kidney that may need a biopsy.

We saw a urologist 2 days ago but requested a copy of the scan before the appointment.

I have a medical background so know terminology etc

The scan said a 3.5 x3cm suspected renal cell carcinoma T1N1M0.

We were prepared with questions when we went to see the urologist.

He said they had had a MDT meeting and my partner needed a tri phase scan.

I said so it's a suspected renal cell carcinoma.

He was extremely dismissive and said no it could be a cyst.

He didn't want to answer any questions and was basically horrid to us I asked when the scan would be and he said when the already busy radiology dept have time.

I have phoned to make  sure the referral has been done and sent and it has .happily the radiology staff were much nicer.

They couldnt give a date yet for it but said ring anytime to check if Imworried .

My partner seems ok at the moment we were prepared for the worst to be said when we saw the consultant but are so confused now.

Thanks.. it helps to write things down.

  • Hi    and a warm welcome to the Macmillan Online Community but sorry that you needed to find us and I am especially sorry to hear about your partner's worrying time after his meeting with his Consultant who sounded quite dismissive. The thing is MRI & CT scans only show so much, the main proof comes after a biopsy is done. It's strange the way some Consultants seem to be totally lacking in empathy and they don't seem to appreciate the fears we're going through.

    Although I had a different type of cancer, any possibility of cancer diagnosis brings many questions, lots of confusion and stress but talking with other people who are on the same type of journey will help you navigate this rollercoaster.

    The Community is organised into dedicated support groups so can I see you have joined our supportive Kidney cancer group, this will be a good place to connect with others navigating the (support of a family member on the) same type of cancer journey.

    When you have a minute, it would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Sending you welcoming hugs Bx


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  • Thanks I really appreciate your reply x

  • Hello  welcome to the Kidney cancer group, tho I'm sure it's the last place you want be.

    I hope you soon get a date for the CT scan. We on the nline forum refer to the waiting as " scanxiety". I still get it, 16:years after having my kidney out, as I have regular monitoring scans to check all's OK..

    Kidney cancer' s a slow grower compared with many other cancer's, n there are lots of meds available for it, incl many which have come on stream in the past few years.

    Once you get a treatment plan, things will seem a lot clearer n  you'll see an  oncologist as well as the urologist, plus you'll have access to a cancer specialist nurse- an extremely useful contact.

    I'm sorry you had such an awful experience vwith the urologist. He obviously didn't like the fact you knew what you were talking about!

    Don't let it put you off asking questions/ taking notes.

    Best wishes, Sue

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Btw, you might want to join the Family and friends group, to get support for yourself?

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hi Worriedpartner sorry you've had to join group . They are obviously not convinced it is cancerous or they would go straight to kidney removal and not do biopsy although that is no excuse for them to be dismissive of your concerns.  If the report you seen is correct it's still quite small and hopefully removable and doesnt sound like it has spread which is good news . Scan appointments are very last minute currently, my husband would get a phone call rather than a letter and it would usually be to go in a few days x