Hi, I'm after a bit of advice. My background is that in November 24 following my diagnosis (t1b 5cm tumour in my right kidney) I had a radical nephrectomy. I have thankfully had clear CT scans and have recently been moved to annual from six monthly. Prior to each scan I have had a blood test to check my kidney function and my consultant has never seemed concerned.
I recently had an annual blood test requested via my GP and much to my dismay, I have been diagnosed with CKD 3. My eGFR has been stable around 56/57. My ACR was checked in August 25 and was 1.6. I have read that kidney function alone should not trigger CKD, but the combination of low kidney function and signs of damage in ACR and protein leakage. The next step is for me to provide a urine sample and hopefully my ACR remains low.
Has anybody on the group come across the same thing?
Hi Pablo1976 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Yes, my eGFR is now suboptimal, impacted by a reaction to the immunotherapy (ipi/Nivo) I had in jan-march 2022.
We had to pause my treatment for 6 months whilst we treated the kidney function.
My eGFR was quite normal, over 60, rectreatment, but it plunged to the low 30s as a result. It's now about 52/3 so never recovered back to previous levels. Acute interstitial nephritis (AIN) was what I was diagnosed with.
It doesn't cause me any issues. I feel fine. I regard it as an infortunate side effect from the treatment.
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