I was diagnosed with pT1b TFE 3 rearranged renel cell carcinoma. My tumour was 7cm and had it removed (now cancer free). My doctor didn't know much about this cancer, nor his colleagues. I've been put on surveillance for high risk, having scans every 6 months for 10 years and then annually for life. Has anyone else received this diagnosis and could tell me more about it, first hand experiences etc. I think it would really help me.
Hi Chiz39eff1 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
