I was diagnosed with pT1b TFE 3 rearranged renel cell carcinoma. My tumour was 7cm and had it removed (now cancer free). My doctor didn't know much about this cancer, nor his colleagues. I've been put on surveillance for high risk, having scans every 6 months for 10 years and then annually for life. Has anyone else received this diagnosis and could tell me more about it, first hand experiences etc. I think it would really help me.
